| | Joined: Jan 2009 Posts: 71 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 71 | Just noticed this post. I do lurk occasionnally, but find that my chemo/radiation/PEG experience is something most people on this site have gone through and are more than willing to answer questions about. With the exception of having Hermittes Sign for about six or eight months, most of my posts are dittos of other posters. But, I have participated in both walks Elizabeth Sikon ran in San Antonio and raised a nice chunk of money for the cuase and feel pretty good about it. Elizabeth's brother also made a nice PSA type video of me that turned out excellent - http://www.youtube.com/watch?v=9B8QZNx4TlY. So Michael Douglas has nothing on me!! Ran most of this year's walk until the misty rain made it a little to slippery to run on the steep pavement. I didn't want to search for a forum on broken hips. I met Charm, Christine and Eric at the two walks. All are quite strong survivors who went through a lot more than I did. I'm about three and a half years out now and doing quite well. Today i came back to see if anyone had posted the link to this obituary - http://www.legacy.com/obituaries/saltlaketribune/obituary.aspx?n=val-patterson&pid=158526785 The guy was a victim of OC and wrote his own obituary, which I did think of while i was getting treated. It's a great read and while reading it I wondered if he was ever a member of this site. Might be worth a separate post, but here is a good start.
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ray, I read about him on the Yahoo news. I dont think he was an OCF member but you never know. Some members prefer to be more private and dont like to be identified so we never know who they are.
It was great to get to talk with you at the first San Antonio walk! So glad you came out for it. You are a very lucky guy to be doing so well. Wishing you many more years of good health!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2010 Posts: 24 Member | | Member
Joined: Apr 2010 Posts: 24 | Hi All... I still visit the boards quite a bit and should contribute more.. Everyone here was so supportive when I was diagnosed and was in treatment. I just had a follow up with my ENT last week and there is NED. It has now been 2 years and 4 months.
Tommy
Tommy
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
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