| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Me too hope you recover quickly and remember give yourself time to heal. Hugs and blessings!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | So glad you updated. Keep up the good work. Remember you have all of us backing you!!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jul 2011 Posts: 131 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2011 Posts: 131 | I'm also in the fight against larynx cancer my friend. Sept. 1st will be 1 year since treatment. I have a scope with my ENT on the 18th so I have some trepidation. I had the same number and kind of rads that you did except my ENT decided to be very aggressive and I had chemo as well. I hope it made a difference.
My heart goes out to you regarding your voice. It has been one of my major concerns as well. Before cancer I was an award winning singer, having a 5 octave range. Then I started to lose it slowly over time, in a way that was insidiously ignorable until all I had left was a gravely speaking voice. Unfortunately being the kind of person I am, as I lost ability to do one thing, I seamlessly transferred my focus into a different talent. Because I sounded like Wolfman Jack, I got into talk radio. So when you mention your career being voice dependent I know exactly how you feel. It's a really big deal for us. Really big.
But I want to also share with you my realization that I am awesome enough to do other things and that my identity doesn't resolve around my voice. So if I have to lose my voice, I will do it and refuse to be afraid because I am more than a stream of sound and everything else about me is worth fighting for.
So I hope that you fight and know that I am fighting with you. Right here, right beside you. Shield up, sword in hand. And by the grace of God and the will to live, we will carry on and do great things.
Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]
| | | | | Joined: Feb 2011 Posts: 45 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2011 Posts: 45 | Hank thanks for the uplift...looking into voice amplification units now that may help me. I need to find something that works with cell phone if possible. Thanks Steve Hurlock
SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | That was truly an amazing post Hank!!! I love the support we have here.I'm so happy to be part of the OCF family.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hank - you are truly awesome! I loved your post, especially this part:
<<I am awesome enough to do other things and that my identity doesn't resolve around my voice. So if I have to lose my voice, I will do it and refuse to be afraid because I am more than a stream of sound and everything else about me is worth fighting for. >>
We have so many awesome and beautiful people here who are way more than what OC has done to them and who have given so much of themselves to help others.
Steve - Re the voice amplification unit - I wonder if the new app being worked on by OCF for iPhone (and later Android) could be a part of this voice amplification? Let us know what you find out.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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