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Joined: Jan 2009
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smile oh I love the direction this discussion is taking...


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Joined: Jun 2012
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Hmmmm.....well now I have a headache smile

Well, all I can say is I am an "aggressive" guy by nature and I asked (maybe he would have done it anyway) my ENT to give me a finger exam and scope every 30 days, he agreed. I see my oncologist every 30 days (but not sure how much longer he will agree to that). I am and plan on being my best advocate.

My hope is the study that comes out in 2015 says Erbitux is a "wonder drug" ...lol smile We shall see.

I also say my prayers nightly for my board friends and myself that none of us have to go thru this more than once, and if any do I just pray all the harder for them!

Best,

Tim6003
CANCER FREE AND PLAN ON STAYING THAT WAY!!!!!!

To share a funny note; My lovely wife told me at the beginning of my dx / treatments that "if you die, I will kill you" ...it took a moment for her to realize what she said, plus that "deer in the headlight look I gave her" probably helped her figure it out.

Joined: Jul 2011
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We haven't started in on the various radiation protocols; that will really give you a headache!


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Mar 2008
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Actually, probably a lot less conflicting opinions on radiation protocols than Erbitux. This thread IMO does not need much more discussion especially with the additions the posts of Erbitux working successfully for Tim & Maria's husband to balance out the concerns I've raised with my experience of Erbitux not working.
At this point, we will need to wait until the results of the new clinical trial are in to see what the facts really are. Right now, all we know is that Erbitux does not work for a significant percentage of oral cancer patients. We don't know the exact mechanism or reason as we do about why Erbitux does not work for many colon cancer patients although there are many possible candidates. HPV remains the big question.
IMO, there is no harm in a patient asking their oncologist why he/she is recommending Erbitux only instead of cisplatin or carboplatin and what is Plan B if no acne rash develops.
One would hope the oncologist is as well informed as Maria and her husband on the ambiguity of Erbitux.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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