| | Joined: Apr 2012 Posts: 47 "OCF across the pond" Contributing Member (25+ posts) | OP  "OCF across the pond" Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 47 | Hi just a simple new thread that has probably been done to death before. I have HPV interstingly I still await the biopse how do they not know it is not Planus Lincus??? "2nd week of Chemo no sickness anyone want a Chemo boast contest? Should I be kissing my 2 and 3 year old beautful daughters? Ruby is my Gardian Angel she cuddles me and pats my back. She has been massaging my Lymph Node from before I new I was sick? Children are beautiful. Should I share a glass of juice with them? Daft questions I know but it is hard coping with such a scarey illness with such a simple start> Kung Fu Panda 11 "I love you Guys" Today I am making Puppy faces out of recycled yogurt snap cartons.As veiwed on BBC ART ATTACK. Cuddle your cancer and send it away never to return.
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
| | | | | Joined: Sep 2009 Posts: 8 Member | | Member
Joined: Sep 2009 Posts: 8 | transmission of HPV only happens during open mouth kisses due to interaction of saliva. so kissing your daughters on their cheeks is not likely to get them infected. sharing juice?? ya. maybe avoid it just to be sure.
CG to father, SCC, soft palate - Aug09, 3 TIP, 6 Erbitux + 30 IMRT (60GY) - Jan 10
October '10, Left Partial Maxillectomy + Palatectomy + Recons, 8 methotrexate.Extreme pain in throat and head
August '12 - Right partial Maxillectomy, Left complete maxillectomy, Mandibulectomy, further treatment?
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Keith, This last week I attended a lecture by Dr. Edmond Truelove, former chair of Oral Medicine at the University of Washington, on Oral Cancer at the Pacific Northwest Dental Convention in Seattle that went over his recent oral cancer research which included dysplastic conditions in the oral cavity. It was really quite fascinating and I learned a lot about dysplasia (Lichen Planus, lichenoid reactions etc) as it pertains to oral cancer. HPV+ oral cancer develops in the Base of Tongue area and rear oropharynx (tonsils etc) in an area that is hard to detect and no visible early warning signs like dysplasia that we currently know. There has also been no evidence that I've seen that indicates the virus can be transmitted via saliva or kissing. That being said, there are a lot more questions than answers when it comes to Oral Cancer obviously so vigilance and precaution, if only for peace of mind, makes sense. I wouldn't let it consume me in anyway, however I would make sure to get regular checkups with a Dental Oncologist or ENT that uses a VELscope screening device to monitor the dysplasia and keep a photo record of it to monitor changes etc.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I was told by Dr Anna Giuliano, Chair, Dept of Cancer Epidemiology and Genetics, who I have traveled with and given speeches with, that HPV is highly contagious and can be transmitted via deep throat kissing so I agree Vaibhav's post. I also agree that more about HPV is NOT known than is known. CubanKeith, how do you know that your cells are positive for HPV if the biopsy isn't finished? Adding a Signature Line would be most helpful if you plan to continue to post.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Thanks for that info David, I'll have to read her research on it. It's scary talking to these great minds and understanding what they don't know about this disease.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Eric, It's also been 1.5 years since she made that comment to me and a lot can change in that time frame medically speaking. I also question his HPV status and without a Signature Line it's really hard sometimes to answer a post. It's also quite possible that EVEN if he is/was HPV+ that he is no longer but anyway I thought the best way to answer his post was conservatively.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | well considering your age, ethnicity, and occupation David, I'd say conservative would define you in many ways  sorry couldn't resist!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hmmm.... if the biopsy is on lichen planus (or an area where you would find it) likely it's not HPV related because usually that's on the mouth, no? In answer to the original question how do they know it's not lichen planus... a biopsy will tell you... ;o)
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | My point exactly, without the bio results how can one state that they are HPV, conversatively speaking, of course. Man talk about occupational profiling!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 |  Profiling is interesting, you can tell a lot about a person by such small things as the words and phrases they choose, how one dresses etc. The occupation, age and ethnicity are the easy, more general indicators. Sorry I've watched entirely too many episodes of Criminal Minds.
Last edited by EricS; 06-20-2012 06:47 AM. Reason: always spelling
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So now I'm a Conservative Criminal? Will this abuse never end? Remember you are just a Young Frack but I am THE CoolFrack.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 |
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | I'm not a frack; I'm more of a fruck.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Od Frack, Young Frack, Cool Frack, Fruck - you are all Cool! 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Anne-Marie, there is NO WAY I could have typed that successfully, lol.
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | I once was a very young frack,
Till I suffered a lymph node attack;
So they slit up my gullet,
Just like a red mullet,
But since then it's never been back!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Cool poetry! How about "Frack Attack" for a title?
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Oct 2011 Posts: 7 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Oct 2011 Posts: 7 | Hi all, I've just caught up on the many conversations on HPV. I can see it's been an active topic! One question that I didn't see answered was if anyone knew the accuracy of the oral HPV test that is offered at many dentist's office. You gargle a saline solution for 30 seconds that is then sent in for PCR testing. It tests for many genotypes. Does anyone have any insights? Does it measure a point in time? i.e if negative, you've never been exposed or don't have active infection. If positive, active infection that may clear? Any knowledge appreciated! Thanks, | | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | [quote=Alcajazz]One question that I didn't see answered was if anyone knew the accuracy of the oral HPV test that is offered at many dentist's office. You gargle a saline solution for 30 seconds that is then sent in for PCR testing. It tests for many genotypes. Does anyone have any insights? Does it measure a point in time? i.e if negative, you've never been exposed or don't have active infection. If positive, active infection that may clear?[/quote] The test has been discussed in this thread. My dentist offers it, but notes that it is of limited use because it does measure only a specific point in time.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Apr 2012 Posts: 47 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 47 | CubanKeith Still in the casa? Hey David and Eric having a good chat.People say I stereo type why not, I can call it profiling from now on.For a catch up I asked and got the biopsy it is HPV 16. I am entering week 10 for 4th Bag Cisplatin and 2 more weeks radiation.I feel like jimmy Cagnay in the movie?"Boys Town" they will be taking me down the corridor screaming I am so scared of how this has built in me, also in LONDON i have spoke with a DR who treats feet and hand papilomas with Candula, he was doing research into seeing if HPV responed to Marigold therapy, well I have my herbal mouth wash. I hope my post has come up and is sort of clear? I love my PEG forcing food down led to rotten food and nasty mouth, I drink water for swallowing and use my PEG for sustainace. My PICC will come out and I can consider swimming again soon. My helpful hint is use a Nebulizer for clearing Gunk in throat and mouth. Medals to every one who has gone through Chemo radiation so many heros. " Little pain for the long term gain" from another user thanks.
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | cuban keith Still living La vida loca eh.? You are a continuing source of education for me on the latest and greatest homeopathic fake remedies. I hope in this case, you are talking about a real compound of Marigold/Calendula, which is not the homeopathic one peddled on the internet at all but actually fabricated from a plant of the marigold family, Calendula officinalis. The digest is obtained by incubation at 75�C in petroleum jelly to extract the liposoluble components of the plant. A small study in France showed that an ointment made this way (instead of the homeopathic fallacy of diluting it to nothing with water)showed benefits for radiation dermatitis on female breast cancer patients after radiation. That study was done back in 2004 by the manufacturer of the ointment and I can't find any other studies since then which is a shame. I haven't see anything about it working on HPV, but the internet claims it cures most everything, which is usually not a good sign. BTW: Jimmy Cagney was never in the movie Boys Town, the tough kid character Whitey Marsh was played by Mickey Rooney Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | Charm, I remember reading something about the, ahem, efficacy of homeopathic dilution, to the effect that one of the more popular solutions contains something akin to one molecule of whatever the heck the original stuff was in a volume about equal to that of our solar system.
Hello molecule..... where are you....?
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Re the efficacy of homeopathic dilution, a recent OCF news article ( http://oralcancernews.org/wp/category/oral_cancer_news/) mentions that: <<An extract found in the bright yellow curry spice turmeric can kill off cancer cells, scientists have shown. The chemical � curcumin � has long been thought to have healing powers and is already being tested as a treatment for arthritis and even dementia>> I suppose this mean that the spice turmeric that I just put in my bread and butter pickles (1/2 tsp in three 16oz jars) isn't really going to have any effect on my arthritis? Nor kill off any cancer cells that might be lurking around?
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | Anne-Marie, methinks there's a big difference between the ongoing research that is showing some correlation between things like turmeric having an effect on cancer cells, or anything else for that matter, and the philosophy of homeopathy, which as far as I'm concerned is a great way for some people to make money from gullible idiots.
If you're interested in researching the latter I'm sure there are numerous sites and studies available.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | David2
I assumed that Anne-Marie was just continuing your humorous approach to debunking homeopathy. My assumption was based on her unwavering support in PMs to me when I am attacked on the forum by the magical thinking brigade .
I really do appreciate your and others chiming in whenever the latest woo woo pops up. You and she have a lighter touch that may help get the message across better than my righteous and didactic responses. After I get my biopsy report, I'm planning on a new thread in the adjunctive forum, where I will excerpt from blogs exposing these alternative or woo woo or quackademic treatments. Some of the comments to those blogs actually make my posts look meek and mild .
CubanKeith is really a good guy who never tries to defend or argue about these wacky remedies/treatments that his friends and acquaintances share with him. I meant it when I said he is a CLE for me as there are so many false hope peddlers and new age charlatans out there. I was deluged with most of them by well meaning but gullible friends and colleagues at first until I chided them so some of the ones he mentions were new to me.
Charm
Last edited by Charm2017; 08-21-2012 10:18 AM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | You assumed correctly, Charm. And we really do need your "righteous and didactic responses"! Looking forward to the new thread in the plans.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Apr 2012 Posts: 47 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 47 | Charm 2017
Hey old timer, if the movie was not boys town i am sure it had Cagney after a chat with the priest, anyhow I defer to your age and movie wisdom. Many night I am looking for a classic old movie suggestions happily recieved. I am on week 11 of Chemo and 5 of heavy radiation, I would still be cracking jokes if it did not split the side of my lips. I am staying staight on the hard path as adviced and supported in this great forum. The candula is from a decent supplier and tastes alittle more pleasant than some mouth rinses.
Keep up the good work,
Keith
Last edited by CubanKeith; 08-23-2012 06:49 PM. Reason: Replying to Charm2017
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Very helpful David. As for kissing, no way for me as I couldn't if I tried. No jaw is tough as some of us know. It changes your life big time. Keep up the good work guys.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Keith and Charm - I asked my husband and he thinks you may be thinking of Angels with Dirty Faces.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | All of Cagney's movies were good but I agree with Charm. Boys Town can be eliminated.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Maria
thank your husband for me. Indeed Angels with Dirty Faces (1938) has Cagney as Rocky Sullivan, the bad kid and Pat O'Brien as Jerry Connolly, Cagney's childhood friend who has become a Priest and Humphrey Bogart as the crooked lawyer. I should have thought of it since that movie has one of my favorite lawyer quotes
[quote]Cagney as Rocky Sullivan: [to Jim Frazier played by Humphrey Bogart] Look, I know you're a smart lawyer - very smart - but don't get smart with me. [/quote]
Plus I'm pretty sure the quote that Cuban Keith referenced was Cagney's
R[quote]ocky Sullivan: No! I don't want to die! Oh, please! I don't want to die! Oh, please! Don't make me burn in hell. Oh, please let go of me! Please don't kill me! Oh, don't kill me, please![/quote]
charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Apr 2012 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 32 | Very good question! I wonder if my wife should receive a HPV shot or other treatment to reduce chance of SCC HN. I am survivor of SCCHN HPV+. My doctors have never suggested she should seek any treatment. Thoughts? Thanks!!
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Ken While CubanKeith's question certainly was a good one, I think you can tell from the rest of the posts on this thread that the answer was given right off the bat: DON'T FRENCH KISS just to be safe. With over 8,000 members here on OCF, I have not seen one post that any of the caregivers got oral cancer from just kissing their patients. My own experience as someone who has gotten oral cancer not just once or twice but three times yet being the recipient and giver of loving kisses from my wife with no transmission of cancer seems typical. The vaccine is probably a little late for your wife. There was a flurry of scare tactics & hysteria on HPV & kissing at first on some TV shows, just like at the beginning of the AIDs epidemic. Unlike AIDs, HPV is usually handled by a person's immune system and the lack of any documented transmission of oral cancer thru kissing resulted in no more news stories. That's probably why your doctors never suggested any "treatment" (plus I am unaware of any "treatment" for HPV anyway) On the other hand, it could not hurt for your wife's gynecologist to order an HPV test of her cervix or pap smear. In addition to oral cancer, HPV does cause cervical cancer. Those are my thoughts Charm
Last edited by Charm2017; 09-26-2012 06:24 AM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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