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Joined: Mar 2012 Posts: 9 | | | | | | Joined: May 2012 Posts: 18 Member | | OP Member
Joined: May 2012 Posts: 18 | thanks this is good information to know. i will keep this in mind.
CG to Joel 1st tumor flr of mouth 1998, 38 rad trmts 2nd tumor back of mouth/throat, rad neck, part remvl of jaw, soft palate rmvl, no chemo or rad, has a peg tube since dec 2011.Frmr smkr 25yrs ago, drinker, worked in HVAC indus 35yrs. 3rd dx on 6/20/12, hospice6/29/12, died July 17, 2012
| | | | | Joined: May 2012 Posts: 18 Member | | OP Member
Joined: May 2012 Posts: 18 | well after having his fentanyl patch bumped up because the gabapetin wiped him out too much, they upped patch to 75, and that was way too much, sleeping way too much and could not get off couch, called dr back and said he was sleeping too much, could we try lyrica and within the first day, he was a whole lot better...actually feeling good enough to leave the house and putz around the garage...so thinking we are getting the meds worked out finally. thanks for the suggestions.
CG to Joel 1st tumor flr of mouth 1998, 38 rad trmts 2nd tumor back of mouth/throat, rad neck, part remvl of jaw, soft palate rmvl, no chemo or rad, has a peg tube since dec 2011.Frmr smkr 25yrs ago, drinker, worked in HVAC indus 35yrs. 3rd dx on 6/20/12, hospice6/29/12, died July 17, 2012
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | That's so great... its amazing how differently people respond to different meds. hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2012 Posts: 18 Member | | OP Member
Joined: May 2012 Posts: 18 | well no good news...since last post, had PET scan showed significant tumor again and it had only been around 5 months, husband opted not to do any more surgeries or radiation, so just trying to do pain management to make him comfortable, had tried to go down to hospital for nerve block they ended up trying to go up through sinuses and block there, but didn't work, and since then he had me call hospice in for pain management, but things work for couple days, then he has allergice reaction or swelling from the cancer, keeps being nauseated even on nausea med, trying steroid to shrink swelling and worked for awhile now swelled up again. he just can't catch a break, failing fast! just wish his nausea and pain would go away. he is on 62 fentanyl patch, roxicet 10 ml, took lyrica away since pharmacist said could cause facial swelling after so long...just trying to figure out what is causing the nausea and swelling...a guessing game.
CG to Joel 1st tumor flr of mouth 1998, 38 rad trmts 2nd tumor back of mouth/throat, rad neck, part remvl of jaw, soft palate rmvl, no chemo or rad, has a peg tube since dec 2011.Frmr smkr 25yrs ago, drinker, worked in HVAC indus 35yrs. 3rd dx on 6/20/12, hospice6/29/12, died July 17, 2012
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2012 Posts: 18 Member | | OP Member
Joined: May 2012 Posts: 18 | Well, my husband went in for his PET scan on june 19th and was told that the cancer was back and very aggressive, my husband opted not to have surgery or radiation. we had tried to go and do the nerve block but they opted to do a nasal block, which didn't work, the next day he asked me to call hospice and i regret to inform u less than a month after the last diagnosis he succumbed to the disease. He fought a great fight and died with his dignity, he was still giving a thumbs up to some family members the day before he died and went quickly. thank u for the support.
CG to Joel 1st tumor flr of mouth 1998, 38 rad trmts 2nd tumor back of mouth/throat, rad neck, part remvl of jaw, soft palate rmvl, no chemo or rad, has a peg tube since dec 2011.Frmr smkr 25yrs ago, drinker, worked in HVAC indus 35yrs. 3rd dx on 6/20/12, hospice6/29/12, died July 17, 2012
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry to hear your sad news. That was so fast from being diagnosed with the recurrence to his death. Please accept my sincere condolences in the loss of your husband. May he rest in peace, free from any pain and suffering.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2012 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2012 Posts: 114 |
Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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