#15016 03-06-2004 10:38 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Anyone ever heard of Raynauds. I have it ane my hands and feet get very cold. Have to stay in bed with heating pad to keep warm. Hope it goes away. also have a cyst on left ovrary. Ugh!!!!! So sorry to hear about Packer's death. Hope to hear from someone soon. Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#15017 03-06-2004 01:15 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Cathy, In the medical dictionary there is a Raynaud's Disease and a Raynaud's phenomomen.
It could be related to a peripheral vascular disorder (more common in females 18-30) and it can also be caused by exposure to cold or emotional stress.
It states that 2 years of symptoms are required for an accurate diagnosis.
Prognosis: Attacks persist but can be controlled. No serious disability develops, but this condition is sometimes associated with the development of rheumatoid arthritis or schleroderma.
Treatment: Maintenance of warmth of extremities by wearing wool gloves, socks, avoidance of contact with cold materials, avoidance of use of tobacco. Vasodilators and tranquilizers may be helpful.
(source - Taber's cyclopedic medical dictionary)
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#15018 03-06-2004 01:17 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 139 | Hi Cath, Raynauds phenomenon is a circulatory disease which affects the hands and feet. The blood flow to your extremities slows down and stops leaving your toes and fingers very white and painfully cold. After the attack you will notice that digits become blue before going back to normal. There are meds you can take and surgery (sympathectomy) for advanced cases. I trust you are not smoking because that is the worse thing you can do! Wish I could tell you how long your attack will last but I don't know Hope this helps a little, Judy U
Judy U Stage I SCC floor of mouth, left radical neck dissection 8/03
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#15019 03-06-2004 01:40 PM | Joined: Mar 2004 Posts: 10 Member | Member Joined: Mar 2004 Posts: 10 | I had a mild case of it in my 30's effecting my fingers which turned white and cold for no reason. It did go away in 2-3 years. I was told to rotate my arm like a propeller to force blood to the fingers which alleviated the numbness. Regards
T1N0M0 squamous cell carcinoma treated with hemi-glossectomy and tongue reconstruction with a radial forearm flap 3/04
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#15020 03-06-2004 01:56 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Dec 2003 Posts: 116 | I've had it since I was a teen and I'm 38 now. It's worse, it seems, when I hold a cold drink or rummage through the freezer for something. Getting in the car and driving on a cool/cold day affects me also...the steering wheel makes my fingers turn numb, white, and painful. If I can get them warmed up fast (like run warm water on them or hold them inside a pocket for a bit) they will turn blue/purple and hurt like mad before finally going back to normal. I keep meaning to have a doc give me treatment, but who has time for that. There are these neat little hand warmer things you can get at most department stores that heat up for several hours when you activate them (mine are called Hothands-2 but there are other brands). They are a buck each and are sometimes found in the hunting section. I carry them with me when I know I'll be in the cold (like at a ball game or going for a walk).
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#15021 03-06-2004 02:52 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | For what it's worth, I am a musician and can't play well when my fingers are cold from the steering wheel so I wear gloves a lot - mainly just leather driving gloves (I'm in California after all) and I find that helps the hands a lot. Hunters have all kinds of neat things to keep their hands warm also -you may may want to check out Cabela's online http://www.cabelas.com/ or http://www.cabelas.com/cabelas/en/c...2Fen%2Fcommon%2Fcatalog%2Fleft-nav.jhtml
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#15022 03-08-2004 02:00 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Hi I want to thank you all for your advice. I found the hotone for the hands. Very gratefull. I also have Hi Blood pressure with it too. Have to retire to my bed and get warm again and the blood pressure to go down. Thanks again. Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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