| Joined: May 2012 Posts: 25 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2012 Posts: 25 | I'm extremely frustrated right now... I have been trying to get answers from my doctors/nurses as to when I am permitted to return to work (because I am on short-term disability) and I haven't heard a peep. I mean really? They can't tell me "no, you're not ready to go back to work yet" or "you should be able to return to work now with the following conditions:..." or "you can return to work as normal effective immediately" or something of the sort? REALLY? what the hell? and despite all of my bitching and my surgeon's nurse's promise to set me up with Physical Therapy, I still have zero information on that either. Am I being unrealistic here??? I can't just go back to work whenever I feel like it so why are they not giving me answers?? Grrr! Carpe Diem!! 38, non-smoker, otherwise perfect health. Biopsy: 3/8/2012, SCC Dx Right Underside Tongue: 3/12/2012, Surgery: 4/11/2012 Partial Gloss + Neck Dissection to remove 29 nodes (all clear). No Rads or Chemo req'd. I believe my SCC was caused by product used in dental work.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | If I were in your situation, I would call their office at least once a day until I had the answers to my questions. If the nurse was to get you set up with PT then nag them until it happens. I know they can get busy and forget but if you are continually calling they will do what you need so you stop bugging them. The squeaky wheel is what is sometimes necessary to get action.
Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Do you do office work, or is more physically active? Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: May 2012 Posts: 25 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2012 Posts: 25 | I work in an office - mainly on the phone and computer but I also teach some of my colleagues how to use my company's systems and processes. I sometimes teach classes of 35 of my colleagues.
Well - I must have copied the right people in my latest email because I finally got an answer!!! 5/28 I am clear to go back to work... and they are mailing me a prescription for PT for my shoulder and neck, which is totally fine because otherwise who knows how long I'd have to wait.
I can't wait to get back to work. You guys were all right, though... Only by constantly nagging was I able to force an answer out of them... Sheesh! Carpe Diem!! 38, non-smoker, otherwise perfect health. Biopsy: 3/8/2012, SCC Dx Right Underside Tongue: 3/12/2012, Surgery: 4/11/2012 Partial Gloss + Neck Dissection to remove 29 nodes (all clear). No Rads or Chemo req'd. I believe my SCC was caused by product used in dental work.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Good for you for being persistent! (sometimes known as "nagging"). And unlike a phone call, email is something tangible that people can touch and see which is a reminder until it gets taken care of. My doctor's office is so busy that no humans answer the phone and since my own personal policy is never to talk to machines, I resorted to sending a FAX one evening and got a call back w/answers from a human the next morning!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Good for you, Pepper. Be really careful with your ergometrics when you return to work so that you don't overstress your shoulders and make your neck stiffer. Set an alarm on your computer reminding you to stand up and stretch a bit every hour. In the coming week, you might want to increase your computer time a bit more each day, and work on your stamina. Best wishes!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | My eye doctor has a theory that if you put monitor distance lenses on the bottom half it will compel you to hold your head up while looking at the computer and help your neck and shoulders especially after treatment but beneficial to anyone on the computer all the time. Eblife has a Posture Shirt that does the same thing by holding your spine neutral. They are a bit expensive but my whole family uses them now whether working out, standing for extended periods, sitting at a computer for hours and even during sleep as it reprograms neuropathways and corrects the spine to more of a neutral position. If interested you can use promo code EB25 and get a 25% discount. Just be diligent on working that neck and keeping it supple. Like Maria says, you need to stretch at least every hour. I didn't have surgery but went back to work in a few weeks and drove 400 miles each way since I had too much stuff to take on the plane. It was tough and I almost wish I would have waited but my time there was needed.
Good luck!
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: May 2012 Posts: 25 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2012 Posts: 25 | Day 2 back to work... I almost feel like my life is back to normal... With the exception of the neck scar and mild swelling I still have around the incision site, which I am constantly aware of. I suppose this is something I will have to learn to live with but in the meantime, I'm glad to have something other than the 'C' word to focus on..... :-) Carpe Diem!! 38, non-smoker, otherwise perfect health. Biopsy: 3/8/2012, SCC Dx Right Underside Tongue: 3/12/2012, Surgery: 4/11/2012 Partial Gloss + Neck Dissection to remove 29 nodes (all clear). No Rads or Chemo req'd. I believe my SCC was caused by product used in dental work.
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Great news! Nice that you had a short work week to ease back into rhythm of things.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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