| Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | How wonderful to hear from you and to know how well Ida is doing! Enjoy your time together and thanks for the great update!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | So glad he's getting better! It's a slow process but you will get there!!  take care and enjoy your time away.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2012 Posts: 34 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2012 Posts: 34 | Hey Guys We are back!.. Had a great time away from everything. Maybe need to do that often  from now on. As for recovery , it is still tough but slowly getting better. What I dont like was the cruel doctor keep on calling my Ida and this is stressing her out, we are back to our original surgeon (who diagnosed Ida at first place) and got great post care at the hospital. We stopped contacting the surgeon who performed the surgery since the post care was so lousy and the surgery he did was OK, not to say its great (a lot of things he did wasnt modern enough and few things he did impacted day to day life - something he took out from the back of the tongue which causes water to flow directly from your throat to nose out, shoulders dropping due to muscle removal which shouldnt happen). So we want to ignore him now and just focus on our regular head and neck surgeon. But this guy just keep on calling.. asking his secretary to call non stop -- causes stress.. I think we are the boss of whom we chose right? We chose our own doctors..... Oh well.. I will straight this thing up... I dont want Ida to stress as stress is one of the major things cancer patient needs to avoid. I missed you all.. hope u guys are doing great... Big Bear Hugs from me Love AL
CG to Ida (33yo f)Tongue CA Stage 1 02/07/11 Biopsy 15/09/11 35x IMRT done 07/11/11 CT Scan - Cleared! 02/12 - Abnormal bump discovered - 27/0212 -Biopsy done It's back!!! wTH.... Surgery Done , 3cm margin and 55 negative nodes cleared Rehab begins | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there it's the drs responsibility to see you're ok that's why he keeps calling. . The shoulder drop is actually likely to happen - particularly with the type of surgery - whoever told you no wasnt being honest with you. It may also have nothing to do with the surgeons skill but rather Ithe disease etc... had problems with mine after having 40 nodes removed. 55 would have more impact (more cutting more damage) but its better than being dead. physiotherapy will help strengthen and repair some of the damage. You need to find a good dr you trust and stick with him or her - continuity of care is very important - that way he gets to know you too. Not to say you shouldn't have a second opinion when you think something's up, but sometimes we get bad news or fall out from a procedure or treatment and change drs because we don't like it when it's not really something the dr has control over...
So glad you're back!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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