| Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | My husband had a scary emergency Saturday evening that landed him in the ICU for 2 nights. I won't discuss that event but want to share my observations regarding his swallowing. He was put on a thickened clear liquid diet while in the ICU. And I noticed that the coughing and choking he usually experiences when he eats was remarkably GONE! The thickened food gave him more control with swallowing. Aspiration may become a thing of the past for him. I am purchasing Thick-it today and planning some new menus to support him. BTW, he was resistant to using this product before. But this hospital stay convinced him that he can look forward to and enjoy drinking and eating with thickened foods and focus on the taste. YAY BREAKTHROUGH!!!!
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry to hear Clark is having problems. Im glad that the thickened liquid worked so well for him. Hope he is doing much better now. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Hi Anita. I've been following your posts. Sorry to hear that Clark is having problems. I will keep both of you in my prayers. He is very lucky to have you by his side.
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Sounds like great option... I find that things go down easier some times with almond milk rather than water. ;o)
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | Hey folks - been away for a while moving into a new position where I work as a speech pathologist in a hospital specializing with folks like me/us!
Here's what I tell my Pt's about thickened liquids:
What happens when you tip a glass of water over on the table? It splashes and moves with lightening speed all over - going everywhere it possible can. Now, what happens when you tip over something the consistency of a smoothie or a milkshake? It doesn't splash and it moves slowly - giving you enough time to wipe it up before it makes a huge mess.
This is the principle at work that makes thickened liquids easier to swallow! The slower the liquid moves - the more time your muscles have to prepare for the swallow, seal your airway and protect you from coughing and choking.
Thickened liquids can sometimes get a bad rap - most people assume they're unappealling Let me say - there's very little that is MORE appealling than reducing coughing, choking and aspiration pneumonia!
Sadly, for some folks, even thickening the liquid doesn't improve the situation enough that they can safely swallow. Always ask your doctor questions you may have about swallowing and ask for a referral to an SLP!
Sorry if this sounds like a Public Service Announcement! :-) Be well!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Brilliant! Can't wait to tell Alex!
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Thanks for posting this! It makes so much sense but here we are almost 4 years post Dx and my hubby is just now discovering the advantages of thickened liquids!
I LOVE your comparison, too. I do think that, at least with my husband, we assume the further out we are from DX and TX, that things SHOULD go back to what they were before Ca. But we are both realizing AGAIN that many things will forever be challenging. It is reassuring to know that there are ways to successfully navigate after OC.
How wonderful that you are working with OC patients! Who better than you to have an insider's view. All my best as you work with and help others find the best ways to manage the after effects! Yay for you!
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
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