| |
#14759 01-03-2004 08:51 AM | Joined: Sep 2003 Posts: 37 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 37 | Dan had a radical neck dissection Christmas eve. They were not able to get all the tumor and it was attached to his carotid artery and pathology shows it in the wall of the jugular up the base of the skull. No clear margins can be obtained through further surgery, so he is getting set up for mega chemo/rad. Trouble is he has to wait at least 3 weeks to heal from the radical neck dissection. He has a very aggressive SCC that grows fast. Besides the pain from the neck dissection, he has bad pain in his face/head and he says he can feel the cancer even though he is taking percocet and mophine patch.
Any information anyone can give would be helpful. This is so discouraging since he just had his tongue cancer only 5 months ago with modified neck dissections on both sides being negative.
Thanks for any input.
Debbie
Debbie/Caregiver/wife of Dan, diagosed with SCC tongue, Stage II/III, 1/3 tongue removal, lymph node dissection both sides of neck, skin graph 7/30/03. Left tumor found - radical left neck dissection 12/24/03. Could not get all of tumor/wrapped around carotid artery and in wall of jugular. 1/12/04 beginning of 6 doses of Taxol/Cistoplatin once a week, and rad 70 gray 5 days a week/6 weeks.
| | | 
#14760 01-03-2004 09:11 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Debbie,
I am so sorry to hear of Dan's condition. You have my thoughts and prayers in the coming days and weeks. Lets hope the Chemo/Rad will do the job. Please email me if you want to vent about it. I'm sure all the members on the OCF forum are pulling for Dan.
God Bless You,
Your Friend, Daniel
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
| | |
#14761 01-06-2004 03:28 PM | Joined: Oct 2003 Posts: 52 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 52 | Debbi,
My sister Marcy also has a very aggressive cancer.
She was dx in January of last year. Had partial tongue removed and lymph nodes. Came back strong in two months, she recieved chemo and radiation.
Came back within a month and a half or sooner who knows, I don't think they ever got it all.
She now has skull mets and the cancer is back on her face and neck. She was told today that they are going to do the Gamma knife procedure on her tomorrow. If is suppose to shrink the tumor on her skull. They are also going to try IMRT on her face and neck. I would sugguest you ask your doctor if any of these can be tried in your case.
They said the Gamma knife would help control her excruiting headaches and slow down the tumor.
God Bless you,
Michelle
Michelle, sister to Marcy
Dx January 03, partial glossectomy/selective neck dissection T2N1MO/recurrence June 03, radiation and chemo/recurrence Dec. 03 mets to spine and base of skull//palliative care//lost her April 10th 2004 Age of 32
| | |
| Forums23 Topics18,267 Posts197,182 Members13,365 | | Most Online1,788
Jan 23rd, 2025 | | |
|
| |
