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Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
Hi there again. What everyone above is saying is very true tongue cancer can move quickly once it's been poked at - mine was growing very very slowly over several years (it was well differentiated - not very aggressive) but the minute they biopsied it - I mean within the month I had a lymph node involved - I was biopsied on the 10th of dec. - results on the 20th - ct (all clear) 21st - except for remaining actual tumor - 27th I felt a lump in my neck - MRI didn't pick it up on the 6th of January - but it was there - day of surgery feb 4 - it was 1.5 cm - and was leaking from the node (ECE - extracapular extension they call it) - and this node was moderately differentiated - so it can change in aggressiveness - and move quickly. If its agressive to start it moves even faster and becomes very hard for the drs to catch. So push (I'm Canadian - I know the way our system works - you have to push) get a referral to the top cancer center here in Ontario (or at least Ottawa) and the top dr. ENT/surgical onclogist - PMH - where I was treated has a specific head and neck clinic - and their ENTs are all surgical oncologists as well. Up front They will tell you the standard treatment - then refer you to the appropriate dep. but it's a team effort always. Good luck and please don't wait! wink BTW - if you find the name of a top notch dr. You can ge ta referral from your GP - otherwise they just refer you within their own "group" - again - take care...


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Feb 2012
Posts: 34
ALZ Offline
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 34
Hope Rod is doing OK...update us..


CG to Ida (33yo f)Tongue CA Stage 1
02/07/11 Biopsy
15/09/11 35x IMRT done
07/11/11 CT Scan - Cleared!
02/12 - Abnormal bump discovered -
27/0212 -Biopsy done
It's back!!! wTH....
Surgery Done , 3cm margin and 55 negative nodes cleared
Rehab begins
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