| | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi D: Enough time has passed, and it time to call that ENT and tell him you want your results now. Waiting this long is unreal! If they say they'll call you back, wait about an hour and call them back. How terrible to have to wait this long - I would be a basket case by now. Do it!
Your OC friend, julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Feb 2012 Posts: 3 "OCF Kiwi Down Under" Member | | OP "OCF Kiwi Down Under" Member
Joined: Feb 2012 Posts: 3 | Much thanks all for the tips - I managed to get in contact with the ENT last Friday and the result was Lichen Planus. Such a relief.
They have run a bunch of other blood tests and I am waiting on the results of those to see where to from here. I definitely still want to keep an eye on it but it's so hard to know exactly what might be causing it. Will have to see what can be done next.
Thanks for your support,
D | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Excellent news! From your description, I had thought thats what it was. Glad it turned out to not be cancerous! Congrats!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there - great news -lichen planus has no known cure really though they are researching it. Someone I know who's had it for years said there's a correlation between it and stress - and I know when I was orinially diagnosed he said it looked like lichen planus and live probiotics helped - I did have an area that was scc of corse but the probiotics did help the other inflamed areas. Ask your dr. And do a bit of research on your own and definitely keep an eye on the area... But so happy for you!! Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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