| Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | OP "OCF Down Under" Senior Member (100+ posts) Joined: Sep 2010 Posts: 179 | I'm so sad this morning. I got a message from Doug that our friend Liza Ford passed away last night at 8,30pm. I know that a lot of the members here are facebook friends with Liza and got to know that she was an amazing lady so i thought i'll let you guys know. So sad but at least Liza is not in pain any more.
35 Yrs old 03/10 SCC T1-T2 Partial Glossectemy end March - margins not clear enough. While waiting for resection - cancer returned,2 new cancerous lumps Re-section End May & flap from cheek attatched. Margins clear. Mid June - 4 teeth out Mid July -32 Rads and 3 Cisplatin 6th Sept 10 Finished Treatment!!
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Thank you for passing on the information Minh. She will be missed by so many and is now with the angels and at peace. A few of us have been in close contact with one of her friends and nursing colleagues. We know that she was medicated and without pain during these last few days spent with her close family. My heartfelt condolences to her husband Doug and children Justine, Nikki and Taylor. I will miss talking, emailing and chatting with her and will never forget my friend Liza. Some people might like to read about Liza's (RIP) journey so here is the link to her profile... http://oralcancersupport.org/forums/ubbthreads.php?ubb=showprofile&User=7709
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | How terribly sad to hear about our friend, but now she is at peace and has no more pain, which is amazing grace. She will be missed by all because she was loved by so many. God Bless her husband and family. In sadness, julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 |
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Liza was a great person. She was only with us on the forum for about a year. Poor thing had such a long battle. She will be missed by many. May Liza now rest in peace free from all the pain. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Liza was such a beautiful person. She messaged me back on the 11th of Feb 2011 looking for strength and inspiration. She was so supportive of our triumphs over OC and looked to them for inspiration to show her anything was possible. I will miss her greatly. We had many of the same tastes and would often chat. She was an incredibly strong woman who had a quiet beauty about her. Never in your face like other people, always respected everyone's privacy but was a never ending support to her friends. Glad she is free of pain but the world is such a sadder place without her. Rest in peace Liza. I will forever think of you when we get a tropical thunderstorm, when I see a butterfly or when I listen to Pink Floyd xx
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Jan 2012 Posts: 112 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2012 Posts: 112 | How come someone with T1N0M0 with free nodes could die? Can you explain?  I�m really afraid right now.
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Brazilliangirl - Liza started off T1 N0 - they removed the area (cheek) grafted her, removed 18 nodes all were clear. They thought that was the end of it. I was a T2 N0 to start but within a month after biopsy I had a node involved. my dr had already told me when I was N0 he was removing 40 nodes period. Liza did not have rads or chemo, after the first operation. She found another node a few months later - waited a bit went to the dr - it was positive for cancer - they removed 20 more nodes - ALL had cancer - at this point they had to wait for her to heal... Before radiation, but the cancer was on the move. It had moved into the skin of her neck they did chemo for 3 mos to stop it then did rads - three months after rads her head and neck were clear but at this point it had moved into the vertebrae of her spine - they did more radiation, but they were chasing it at this point and were giving her chemo to try and stabilize her. Bottom line - she had a very aggressive cancer, and well - would haves and could haves being what they are, I guess it depends on the dr and the choices he makes and how aggressively you want it treated, and how active you are in your care... Some people just don't want to know. Or trust that their dr will do the best or the most for them. Pushing your drs for answers doesn't make them mad - it should give them an opportunity to share their knowledge and makes them realize they are accountable to you - and frankly a good dr confident in their skills would welcome both a second opinion and questions. Some people stand back and let the drs do their stuff or give off vibes that they want as minimal a disruption as possible to their lives, this effects the treatment you get - ultimately I believe do whatever you can to get it the first time - that way there are no regrets if it comes back. I'm not sure what went in between the first dr Liza had and her. But I just wish he'd done a little more from the outset... No one knows if that would have changed things some cancers are just super aggressive. Anyway we've all read the stats and from the outset I've never felt comfort in being a T2 - a T1 could die just as easily as a T4 could live - its random, but this is why we always push newcomers to be active in their care, go to the BEST CCC available to them, and throw the book at it the first time out - because you may not get a second chance. Hugs try not to freak. RIP Liza... 
Last edited by Cheryld; 02-17-2012 09:59 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2012 Posts: 112 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2012 Posts: 112 | Hi Cheryl, thanks for your answer. In fact YES I�m freaking and getting upset anytime I read someone dies from this! I�m living a huge problem at my home, while I wrote this my father is doing chemo, still from unknown primmary. I had tongue cancer last december, I�m about 70 days from the 1st surgery and almost 2 months from the neck dissection. I had 57 nodes removed, all cancer free, no perineural invasion. Should I be less worried? Really afraid to be on this again, my mother and my sister really needs me for the rest of their lifes. 
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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