| Joined: Feb 2012 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Feb 2012 Posts: 38 | Everyone is different of course. My chemo/radiation therapy included acupressure & acupuncture. My treatment started in OK, where acupuncture is illegal, but acupressure worked extremely well for my nausea, I had no pain from those treatments in 2008. Returning to Seattle, I enjoyed acupuncture for saliva recovery, I can nearly drown now. Recurrance of SCC & subsequent jaw replacement/tongue resection resulted in lots of cut nerves, reduced ability to swallow, & pain from all. Pills are ok, but prevent you from doing anything else, so acupuncture was a weekly occurance for a year, now is bi-weekly, and I am working full time as Steam Engineer, but had to give up bus driving job, as I could no longer speak clearly, bummer, love to drive.
69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option) We are all born from Mother, but live and die alone. Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you. ...and now, 3rd occurance: Surgery 5/1/12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive heard good things from some who have done acupuncture for dry mouth. I also heard some things about it from a medical professional who attended a medical conference on acupuncture about 4 years ago. Thanks or posting what helped you, it may also help others. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2012 Posts: 64 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2012 Posts: 64 | Please tell me what acupuncture protocol (placement of needles) that your acupuncturist used, I'm working with an acupuncturist to start treatment.
Thanks.
Stage 3-4 Squamous BOT diagnosed 3/19/12 Molars removed 3/29/12 (Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12 Feeding tube: 8/9/12-11/21/12 Radiation 8/10/12-8/29/12 Chemo 1X/week 8/10/12-8/22/12 Last PET/CT clear: 9/17/13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Lefty, dont you find it odd that your acupuncturist wouldnt already know the needle positions? Please be very cautious! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Paul, you're a brave guy! I was especially sorry to read that you can no longer do what you love, but you're making the best of it which is admirable. I also found it inspiring that the acupuncture has helped with dry mouth. Like Christine, I'd heard about that anecdotally. Good to see an actual case.
Would you say the acupuncture had or is having any effect with nerve damage?
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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