| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so glad to see this update! I knew you could do it! Im so happy you finally found a way to get the biopsy. Now lets just hope it turns out to be noncancerous!!! Please keep us posted. If you get the biopsy it will be about a week before the results come back. Plan to keep yourself very busy so your mind wont make you worry too much. Great job at becoming your own advocate, I knew you could do it!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2011 Posts: 269 |
Nancy (53 at dx) Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs 7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo. 5/29/13 - Found primary 7/3/13 - TORS 7/8/13 - Emergency Surgery/Blood vessel burst in throat 8/9/13 - Peg in 9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck 10/14/13 - Radiation ended! 11/12/13 - PEG out!
| | | | Joined: Jan 2012 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2012 Posts: 27 | The visit to the oral surgeon went well. He said that he didn't think that my ulcer looked or felt like cancer, but that he also didn't have an explanation for what else it might be. He went ahead and did an incisional (I believe) biopsy removing the lesion and some of the surrounding swollen tissue. It was a quick, ten minute procedure but I wasn't expecting him to do it immediately so I didn't eat before I went  . I was told the results will take about a week to come in and I have an appointment on 2/20 to discuss the results. They said if the results are in sooner they will try to get me in sooner.
33 yr old female, former smoker of too many years. Currently awaiting results of a neck ultrasound.
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hi, Penny glad the appointment went smoothly and that the biopsy is done and off for assessment. Try to keep busy while you are waiting for the results.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great job! I hope you feel a little better now that a professional gave you their opinion but also took the extra step to find out for sure if it was cancerous. Best wishes with your mouth to heal quickly. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2012 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2012 Posts: 27 | Howdy,
Just thought I'd pop in for an update. Unfortunately I haven't heard anything back from the surgeon yet, but I do have some alright news.
While my symptoms are not completely gone, they have significantly dissipated since the biopsy, as has my extreme anxiety. I know most people go crazy waiting for the results, but for some reason just having the biopsy seems to have given me a great deal of relief. That is not to say that I am out of the woods, but I am no longer a basket case over the situation. I now wonder if my anxiety wasn't so bad that it enhanced my symptoms immensely. Or perhaps the anti-biotics played a hand in improving my condition. Either way I am thankful for every day that I do not have terrifying symptoms.
I am still a bit anxious to get the results, of course, but I think having someone finally take me seriously enough to run a test is what has helped calm me down. I was so scared that I'd never get to find out one way or the other and possibly do something about it. Now that things are rolling I feel a lot less out of control.
I hope everyone is well and I will let you know what the deal is after I get the results.
33 yr old female, former smoker of too many years. Currently awaiting results of a neck ultrasound.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Penny, I am so happy that you have calmed down. Im even happier that your mouth issues seem to be healing. I bet you feel so relieved, like the weight of the world is off your shoulders. Stress can wreck havoc on a person's physical and mental well being. Please stop back in and let us know when you get your results. It should be any day now. Good luck!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | So glad you got some relief - just try to keep yourself occupied until your appointment and good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2012 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2012 Posts: 27 | Well, I just got back from the oral surgeon and I have my biopsy results. The most important part of the report for me, which I made them give me a copy of, was the part that said "THERE IS NO EVIDENCE OF MALIGNANCY".
When the doctor told me the news, he said I didn't look very excited about it. The truth is I'm unbelievably relieved, but still have no explanation for my other symptoms. I was expecting to hear the worst, though, so having not heard bad things is fantastic.
The biopsy site is healing nicely and looks much better than it did before. However, I still have redness and swelling behind my ears, random lumps around my mouth and face, and an area of thickening on my left cheek. I'm not one to dwell on things, and typically assume the best rather than the worst when it comes to my health because I have never much cared for doctor visits. However, we all know when something isn't right, and it is clear that something is up. I will celebrate for now definitely, but I will have to find a doctor who can help me find out what IS going on.
For anyone who is interested or has any input, here are the details of the report:
The biopsy was taken from the right buccal mucosa
They received a gray-tan nodule of soft tissue measuring 6x6x4mm. The specimen is trisected and entirely submitted.
Hematoxylin and eosin-stained sections reveal three similar mucosal segments showing:
-a raised vaguely nodular mass of fibrocollagenous connective tissue containing a mild chronic inflammatory infiltrate (primarily lymphocytes and a few plasma cells and mast cells)
-exposed surfaces covered by stratified squamous epithelium with mild hyperparakeratosis and basilar hyperplasia
-unremarkable skeletal muscle bundles and mucous glands at the surgical base
Histopathologic Diagnosis: Fibroma (irritation fibrosis, focal fibrous hyperplasia)
I don't expect any of you to spend time trying to interpret that for me, I am just sharing what was said and if anyone has heard of any of this I wouldn't mind commentary.
Again, I really appreciate all of your support and will continue to keep you updated as I continue trying to determine what is happening. If nothing else, maybe it will be helpful to someone else who has concerns about similar issues.
Thanks again, and I really do wish you all the best in your journeys. I've read so much about all of you and I feel like I know you now, even though I couldn't possibly know what you're going through. Your experiences as well as my own are a constant reminder that every day is indeed a blessing and we should all treat it as such, no matter our condition.
33 yr old female, former smoker of too many years. Currently awaiting results of a neck ultrasound.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | You have some kind of irritation going on that may be causing this... Any ideas?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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