| Joined: Jan 2012 Posts: 2 Member | OP Member Joined: Jan 2012 Posts: 2 | I am new to this site,but glad Ifound it.I have had radical neck surgery on dec.7,11 and am in my fifth week of a six week radiation treatment program. So I am concerned ,after reading many posts about posters loosing all there teeth. Does this happen to everyone that goes through radiation?
11-17-11 Throat Scope / RT Tonsillectomy, Results negative 12-7-11 RT Radical Neck Dissection / 2 Lymph Nodes Posative SCC Largest Posative Lymph Node 2.3 cm or 0.9 in 1-10-12 Start a 6 week Radiation Treatment
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Stephenf - My son did not lose any teeth due to radiation, but it probably depends on the type of cancer and where exactly the radiation is directed. Perhaps you could tell us a little more about your own experience and type of oral cancer? My son had SCC (Squamous Cell Cancer) just under the right side of his tongue and had 1/6 of his tongue removed. I'm sure others will be along that can relate more directly to your own experience. It's good you found us here. It's the best place to be for the very latest information and compassionate help. Let us know how you are doing.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF Stephen. There are over 8000 members of OCF. Recently there has been a thread about losing teeth from radiation damage. I would guess that there could be at most 20-40 members who have been affected by this. That figure is actually very low out of 8000! My teeth werent the best going into rads so it wasnt a huge surprise to me. I had fully expected to get implants or dentures unfortunately I had a Stage IV recurrence with complications making future teeth next to impossible.
It is imperative that an oral cancer patient who goes thru radiation use flouride trays for life and take impeccable care of their teeth. Brush after every single meal, use a waterpik with some peridex (prescription mouthwash) watered down twice a day and use the trays nightly. This will become a routine for you.
Best wishes with your treatments and recovery! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Stephen
Short answer: NO Longer more verbose answer: The majority of people do NOT lose their teeth from radiation TX. As Christine notes, the deciding factor is the condition your teeth were in before radiation. Often patients have their teeth taken out before the radiation to avoid problems that are foreseeable. My doctors insisted I see a specific prosthodontist (a dentist with advanced degrees) who specialized in oral cancer patients for a complete evaluation before TX. He cleared me for TX but noted I would need work afterwards. Basically once you have radiation, it's problematic to have any teeth pulled since the jaw may not heal. Getting cavities filled, crowns put on, or even root canals are all okay (I've had all of that done after my first bout of radiation with zero problems). I do use my flouride trays every day even though I don't eat since the mucous actually supports plaque & decay. Get recommendations from your treatment team on a dentist or prosthodontist as cancer doctors usually know good ones with cancer experience. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | My teeth are a mess, but I go every 3 months for cleaning and flouride treatments, as well as using the trays at night. I seem to have a lot of cavities, but neither my RO or my dentist feels the need to pull them. I had a thorough dental exam and x-rays prior to radiation.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2007 Posts: 211 | My husband had his teeth checked prior to treatment but the dentist was not familiar with oral cancer. He has lost most of them gradually to decay and loosening but their is a difference in loss between the side where he received the heaviest radiation and the other side of his mouth. He has had bone growth material and is getting 16 implants in the next month or two.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+ induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | I haven't lost mine, but my dentist (an oral cancer survivor himself) has worked hard to keep it that way. You just have to be vigilant and maybe see the dentist a little more often than you used to.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Jan 2012 Posts: 2 Member | OP Member Joined: Jan 2012 Posts: 2 | Thanks for all the responses,I did goto my dentist before I started Radiation.He did a lot of preventative maint. Work ,I have fluoride trays,electric toothbrush and flosser and he made it clear to me how important dental hygiene would be. so I have been working on that,
11-17-11 Throat Scope / RT Tonsillectomy, Results negative 12-7-11 RT Radical Neck Dissection / 2 Lymph Nodes Posative SCC Largest Posative Lymph Node 2.3 cm or 0.9 in 1-10-12 Start a 6 week Radiation Treatment
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I wish I could have kept mine but the Drs say I would have lost them, not from just the radiation but add in the Implants and Chemo and POW, they would have gone then. If only I had to or enough to gnaw a stek bone or some nice Porterhouse tail fat.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | Oncologist said I would loose my teeth Radiation OC said, maybe My dentist, bless her heart, said she didn't see any reason to pull them, so let try to get through this intact. She won  Made it through with the teeth and have had no problems to date. Kevin 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | |
Forums23 Topics18,251 Posts197,142 Members13,324 | Most Online1,788 Jan 23rd, 2025 | | | |