#14550 09-11-2003 04:23 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Hi Friends,
My first time here. I was diagnosed with squamous cell CA floor of mouth July 1, 2003. Left radical neck resection in August and all nodes were negative! 40 pack yr smoker. I am blessed. No further treatment needed. Would love to hear from other folks.
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#14551 09-11-2003 07:02 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi Judy, welcome to this very exclusive club!
I am happy to hear about your outcome, Just to be sure have you seen an Oncologist? This cancer is a sneaky one and you want to be sure it is ALL gone.
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#14552 09-11-2003 09:21 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Judy,
and welcome to the group. You DID quit smoking, right?
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#14553 09-12-2003 04:16 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Thanks for responses! Mark, all margins are clear and all 25 lymph nodes were negative. I will take your thoughts about oncologist under advisement.
Gary........yes, indeed, quit smoking 8/1/03. We have a lovely picture of my dissection if I am ever tempted! :-)
Thanks Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#14554 09-20-2003 10:23 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi everyone
As I read all the posts from you all and the support that flows free on this site, just wanted to share a thought with you all
A Lot of people will walk into your life, but only true friends will leave footprints in your heart.
There sure is a lot of footprints around here
Cheers Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#14555 09-20-2003 11:39 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Judy,
So glad you are doing so well, Just wanted to make sure you see a radiation on'gist to make sure all the cancer is gone. I had a right side neck disection with no lymph node involvement and I am also receiving 6 weeks of IMRT radiation to clean up and make sure they kill all the cancer. Good luck to you, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#14556 09-20-2003 04:11 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | I agree with the previous posters. Follow up with an oncologist who is not a surgical specialist. 30% of stage one and two oral cancer patients have occult metastasis of the disease to cervical nodes or surrounding tissues. This is a reality not an opinion. Occult means that scans do not pick it up because it is a "micro" met. Frequently these individuals have what is termed recurrences, but in actuality is still the left overs from the original cancer that were too small to see a year or two down the road. Another opinion would not be that big a deal, and may make a difference in your future. Also like the others, I am pleased to hear that you are doing so well. You have all of our wishes that this is permanently in your rear view mirror and your future is full of healthy days.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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