| | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | I know I've seen posts on laryngeal reflux. The past month or more I have had hoarseness, no heartburn, sometimes coughing up mucus, white stuff, then my voice is clearer again. I do sometimes have an odd taste in my mouth, not so much sour, I can't tell what it tastes like exactly. My latest CT showed everything ok, except my thyroid, which is smaller. (already knew that, I'm on meds for hypothyroid)
I am scheduled to have a video of my larynx in action, which is recommended by my ENT doc. It'll show if there is reflux or if I have "weak vocal cords" . . . I doubt it as I don't have the other symptoms for that. I started OTC Prilosec once a day 4 days ago, already got better, but I'm still hoarse, nothing wrong with my breathing or swallowing function. My rad therapy included using IMRT on my lower neck, as my "large scar of variable depths" went over my larynx area. Yes my neck is thin, and they told me unfortunately because of that the scar/cut had to be placed there. I'm a light weight. So I did lose part of my thyroid function, but hoping my larynx was not so hard hit. Guess I'll find out.
Anyone with experience on this?
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Radiation can cause all kinds of after effects. I have a similar problem but I know what causes mine. Its is due to my sinuses being shot from the radiation. Its like I always have a head cold which causes post nasal drip. That in turn affects my throat almost daily. Once I get the gunk out of my throat all is good.
I hope yours is easily fixed like mine is. Best wishes with your continued improvements!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | Christine,
Thanks for that. . . yes I know I won't get off totally free, but am hoping for some kind of fix, even if imperfect.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I too have the perpetual head cold thing.. Ala post nasal drip... Netti pot helps! Dries it up a bit! Hugs and good luck! Is it cold where you are right now? Abe the weather?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | I agree Neti pot helps with the head stuff. But my hoarseness has been something that has become a problem in the past month, especially last two weeks.
There might not be anything to do about it but if it is laryngeal reflux there might be. I just don't have any heartburn. Sometimes a funny taste in my mouth though. I just thought someone might know about this.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | One member has a problem with frothy foul tasting gunk in her mouth. I will show her your post so she will comment. Might be something similar.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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