| | Joined: Jan 2012 Posts: 1 Member | OP  Member
Joined: Jan 2012 Posts: 1 | Hello, I am new to this site...Here is my story 3 months ago, I started to develop chronic thrush on my tongue. I would do 5 days of diflucan, it would get better, then 3 days later, My tongue would flare/burn/sores/red...Like I dipped my tongue in acid!!! It was the most annoying painful thing. So another round of diflucan etc...finally went to a very very kind ENT, he saw a spot on my tongue that he biopsied one week ago today, I go to get my results today. My tongue is still a mess, red/thrush/sore..not to mention the hole in the middle where he cut and stitched I have been a light smoker for 22 years (5 cigs a day) I am a big wine drinker And most likely have been exposed to HPV in my mouth I had some HPV lasered off my cervix 10 years ago Any feedback would be great?? What the hell is wrong with my tongue, my throat and neck hurt as well......... | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hi, Ripley -
welcome to the forum. I'm glad that you will be getting your results, soon - waiting is the worst! Sending positive thoughts to snowy New Hampshire!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | HPV found usually at base of tongue and tonsils, never to my knowledge in forward part of tongue or mouth. Let's hope it's just persistent thrush.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Welcome... I Agree with Dave . HPV is not usually on the oral tongue. If it is OC it's likely not caused by HPV - based in location. Hopefully it's nothing, fingers crossed your results are good. Waiting sucks. Stitches? Your dr must have taken a chunk out! mine removed some tissue from the underside of my tongue, the heads up for me with regards to it possibly being cancer was that it didn't heal. After 2 months it still hurt and unlike before the biopsy, it bled. If you do get an OC diagnosis (which I hope is not the case) then speed is important. Do what has to be done - quickly. Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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