| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you buy Scandi Shakes online, do you get them from Amazon.com? If so, please go thru the Amazon link on the main forum pages. Take a look at the main forum pages at the green box nears the search box. Click on that box and then do your shopping. This will help keep OCF running by giving a 6% kickback from any purchase.
With the holiday season quickly approaching, PLEASE help by passing along OCF's Amazon link to all your friends and relatives. It may not seem like much when its done on a small order, but every cent really does matter to a small non profit like OCF.
Thanks!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2012 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2012 Posts: 38 | I'm tired of all the food commercials, but happy to be reminded what a big mac or steak tastes like, I love to smell my wife cooking in her wok for herself, as I can consume only liquids, and those thru my stomach tube since 5/1/12.
I'm really tempted to waltz into a restaurant and order a cup of mashed potatoes and lots of gravy, any kind, then sneak into the restroom to pump it in.
69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
| | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | HA HA Paul!
I would totally pay to see that!
For anyone less adventurous, I can suggest skim milk powder. It has protein (2 teaspoons has 9 grams of protein), and no flavor, so you can add it to anything
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
| | | | | Joined: Sep 2012 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 64 | I'm trying to switch from shakes (935 calories, ea.) to solid foods. The list of soft foods look good, I've been eating scrambled and poached eggs, as well as cream of wheat and oatmeal, but how to add up to 900+ calories per meal? If I eat solids, which take a while to consume, then I'm filled up and don't want a shake and vice versa.
Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | With EVERY meal, EVERY day I drank a VHC (560 cals) in addition to my solid food well into my 2nd year post Tx to help me not only get needed calories but balanced nutrition.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Grits with cheese and butter is relatively easy to swallow and pretty dense calorie-wise. Get the instant grits; if the quaker dude (newly slender) is on the box, there is a perfectly acceptable recipe on the box.
Sausage slides down fairly well, but be careful about the spicing level - Bob Evans Original is fairly safe.
Noodles. Angel hair pasta with olive oil or cream sauce. Soba (buckwheat) noodles are easy and healthful.
Good luck!
Maria
Last edited by Maria; 11-14-2012 11:16 AM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2012 Posts: 111 | My most recent discovery in useful foods is real chocolate. As long as I have a hot drink I can manage to get through 50gs (half a bar) of 70% or higher cocoa chocolate. The hot drink helps to melt it and stops it sticking to my mouth. High % cocoa chocolate has lots of health benefits as well as being high in protein and fat. Even though the fat is saturated it is a healthy fat. This discovery has really cheered up my eating. It is a handy snack that I can carry in my bag. It goes particularly well with a latte, which gives extra calories and protein, though recent research suggests that the useful flavinoids can bind to milk proteins which stops them being available! This is a shame but hopefully there are still some that the body can use. Sally.
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2012 Posts: 118 | Christine,
The scandi-shakes can be bought directly from the manufacturer @ Axcan.com. You may also call them directly.
Last edited by ChristineB; 11-20-2012 06:01 AM. Reason: removed telephone number
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06)
tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Bette - Perhaps you could do a price comparison between Axcan and OCF's Amazon link. If you get the shakes from OCF's Amazon link, then Amazon gets a a small 6% on each order. Also, I've found that very often Amazon is cheaper on many things and many items are not taxed. Also on some items (not all) Amazon provides free shipping if the order is over $25.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | [quote=Anne-Marie]If you get the shakes from OCF's Amazon link, then Amazon gets a a small 6% on each order.[/quote] I assume you mean that OCF gets the 6%! (And OCF's Amazon link is a great one to use for all your holiday shopping...)
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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