As others have said...been there, done that. Roller coaster is right and it will be that way for a bit, but it really does get easier once you have a routine and know what to expect. Better from the standpoint of the roller coaster. Once you are on your way and see what's happening it is easier to deal with. Try to stay positive as the caregiver. Break down when your husband is asleep and read all you can to learn about your situation.
There will be days of downright sadness as the caregiver, but there IS a light at the end of the tunnel.
Please know we are here and we really do KNOW what you are experiencing. I so wish we had found this site before tx or at least in the beginning. It would have helped me to get advice and support from other caregivers.
Blessings on your journey,
Kathy