| Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | Been researching how treatment programs are being "personalized" or "customized" (these seem to be the most successful ways to Google this category) for the specific individual's cancer, the common thread being that biopsy results and chemo recommendations are attained by testing tumor cells against a wide array of chemo agents to determine more positive outcomes. Anderson appears to be active in this, as well as several Cali oncologists. Any knowledge available re OC and this approach?
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | No but it sounds awesome!!!  the blanket approach sucks right now because not everyone responds to the same treatment. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | it does sound awesome doesn't it? like of a Duh thing, as in why all treatment doesn't roll this way? there in lies my concern. is it a real option to consider, particulary for metastatic cases. if so, who's doing it best. how would it play out with our current team. not to mention getting the patient on plane. building his and our hopes. ...
Last edited by Caco; 12-14-2011 08:08 AM.
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2011 Posts: 571 | Hi! I sent you a FB message about it and how it makes complete sense especially for primary tumors that respond to chemotherapy or chemoradiation. The drugs are proven and widely used in conventional treatment. So, there isn't anything dicey about what therapy they would prescribe. They are just going about the diagnostic process in a more logical and focused way. It will keep from wasting time on something that doesn't work. And they offer the possibility of testing people for genetic factors that influence efficacy. That would be a huge benefit--especially for people who suffer through weeks of something like Erbitux only to find out it didn't work. I see a new standard of care on the horizon. If it works, then it will save money and collateral damage in lives saved and unnecessary morbidity after failed treatment. Wow!
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | love you guys 
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2011 Posts: 571 | Love you, too!  Sending a big hug. You are a warrior caregiver. Keep hanging in there.
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hugs back! Do what you feel you should! Give your dad a hug for me!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I am not sure that I know what the "blanket approach" is? Most here have had treatment plans tailored to their particular type of tumor, location, etc.
My Oncologist actually even factored in my lifestyle when suggesting treatment options.
There are many different ways to get radiation, chemo and surgical techniques now. It's not a simple as it was 20 years ago.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | gary, i'd be happy to pm you if you are interested in the testing we've been researching and the feedback.
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Despite personalizing - or what appears to be personalizing, there is still a hit or miss approach to cancer. They look and say - you have this kind of tumor - so they write up a plan based on previous experience with - this kind of tumor- ie: HPV tumors - BOT tumors - are treated a certain way - Oral tongue a certain way... However what works for one oral tongue patient may not be what works for another - based on genetics, aggressiveness, age and causes of the cancer (smoker? Alcohol use? Etc..) this particular treatment caco is talking about requires freshly biopsied tissue, and they hit it with certain types of chemo to see how it reacts to them, then based on that a plan is built. I have completely over simplified everything here but it is to me far more personalized than the cookie cutter treatments we get - I guess mostly because it involves your actual tissue - and immune system. Good luck caco!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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