| | Joined: Dec 2010 Posts: 99 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 99 | Emmett started to complain about his jaw and ear hurting several weeks ago along with increased throat drainage, we chalked it up to the weather and an increase in moving his jaw as he is taking all his food by mouth now instead of using his peg which is scheduled to be removed Dec. 20th. The pain seems to be intensifing and more consistant. I know he is lonely right now as I have been away from him (see post under "caregiver") and am concerned everything is magnified when he feels down but I am getting worried. His next Dr. appt is on the 20th should we wait until then or not? Is it a sign of a possible reoccurance or damage rearing it's head from treatment that ended 12/10? I have searched this site and know it could be that but I am worried - has anyone else experienced this? I am experiencing guilt that I am here and not with him. But if I leave my niece, she has no one either and she is having a difficult time too. Thanks for letting me dump.
CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Karen. I hope the pain turns out to be just some scar tissue bothering Emmett. If he is that uncomfortable it would be a good idea to try to move up his appointment. It can only help to ease your minds that there is nothing wrong. Unfortunately, pain is something many of us patients live with after surviving cancer treatments.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I agree with christin have it looked at now! It can't hurt and might help! Plus it will ease your mind - and it might very well have a lot to do with him using his mouth more! Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
| Forums23 Topics18,252 Posts197,147 Members13,332 | | Most Online1,788
Jan 23rd, 2025 | | |
|
