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Joined: Jun 2007
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Administrator, Director of Patient Support Services
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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In the evenings when its warm out, I try to walk in the park near where I live. I will walk about a mile almost every day. This will help me sleep since then I will have a reason to be tired. It usually works for me. Maybe it would help your husband too. Another thing to try would be to stick to a routine. Develop a schedule for going to bed at the same time every night and get up the same time in the mornings. Hope it helps.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Joined: Nov 2006
Posts: 2,671
I really sympathize with anyone coping with insomnia and much more so while surviving cancer. My insomnia is the type where I can get to sleep just fine, but I wake up after 3 -4 hours and can't get back to sleep. However, what I do (and I'm not a cancer survivor - I'm a CG) is play solitaire on my iPhone. There's a free one that only has ads in a little strip at the bottom of the screen. That works for me. The concentration on something completely different helps to keep my brain from going over all the stuff like "why does my new kitchen cabinet installation not allow me to open my oven door anymore" to "wonder if that spider I smashed with a phone book" is dried up, stuck to the phone book page and ready for me to throw in the garbage". Seems that the more you think about "why can't I get to sleep" the more you can't sleep. So a mantra like "I'm Sleepy, I'm Sleepy, etc" may work better. I decided to search my iPhone apps and of course "there's an app for that". BTW - I saw a T-Shirt that said "There's a Nap for That". When I was in my 20's, living in Chicago and sharing an apartment with two girlfriends, one of them had terrible insomnia so one night after I had read a book on self-hypnosis, she came to me and asked me to try hypnosis on her. I did and she fell asleep almost instantly. A few minutes later she again came to my room and told me how successful the hypnosis session was. I know- how could it have been successful if she woke up? But she did go on to get a full night's sleep that night. During my son's recovery, his doctor prescribed a sleep aid for him which helped some but of course whatever you try, should be checked out with your doctor. If this post is long enough and perhaps boring enough, maybe it will help someone get to sleep. Feel free to use it anytime you can't sleep. I think I will get back to my Solitaire, now. sleep


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Nov 2011
Posts: 53
Patdeb Offline OP
Supporting Member (50+ posts)
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Posts: 53
Too funny Anne-Marie!!!!


Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
Joined: Oct 2011
Posts: 805
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Thanks Deb. Should have results by Monday after surgery.
Kevin struggles with the insomnia too. His latest combo is a xanex and then 2 Tramadol just before bed. He has slept well on that the last 3 nights. Hasn't even needed to get up to sip water....HUGE!
The weeks are passing and it's getting better. I'm so glad both of us are seeing the positives with each week that passes. You are right, the week away will be so good for you both. Just doing something different helps.
Have a good week!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Nov 2011
Posts: 53
Patdeb Offline OP
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Posts: 53
A FULL night of sleep!!!! A wondrous 8 hours (which he never has had for years)!!!!! I woke up several times during the night because I am used to it, sympathy insomnia. Anyway, he is more tired today during the day, BUT, he went to the workout room for 45 minutes today too, at ALMOST 3000 calories and even looks better. It still is rough swallowing sometimes but today was yet another positive on the see saw that has been our lives for so long. HAPPY DAY!


Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
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Joined: Oct 2011
Posts: 805
Happy Day indeed.
Kev is good one day and down the next. He still feels like there is a lump in his throat that makes it hard to swallow. Everything checked out with the scope though, so we think it just has to heal itself.
My procedures went great. Just a little pain today when I sit!!! The doc told Kevin that it looked good. He said he didn't think it was precancerous even.Phew! Will get pathology reports next week. But it sounds positive.
Are you back home yet?


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Nov 2011
Posts: 53
Patdeb Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Nov 2011
Posts: 53
Last day of work before I shoot home, new prosthesis measuring day for me, yeah lol. It's been a long week of work but a great one for Pat. Because we are traveling we have had to eat out every day which is forcing him to eat more fattening foods.Some days were rougher than others but he actually looks like he has gained this week. He also worked out each day and spent some pool time to relax. Someone recommended Melatonin 5mg from GNC for sleep and that worked too! It's been a great week! I am glad all went well for you, I've been thinking of you and so happy! Our last obstacle is for Pat to be able to eat without the Fentora which he is able to do sometimes. So happy days! Now to go home and START my Christmas shopping. All of this has thrown off my otherwise organized life lol. Have a great day everyone!


Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
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Joined: Oct 2011
Posts: 805
Kevin's Ct came back CLEAR!!!!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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Posts: 945
Kathy - so happy to hear about the clear CT - what a wonderful holiday give to you both!


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
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Joined: Oct 2011
Posts: 805
Thanks Maria! You know my relief!!! Merry Christmas.


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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