| Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Good luck - my fingers are crossed for you too!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Whats your aversion to seeing a qualified ENT? Are you shopping for the answer you want to hear?
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Nov 2011 Posts: 7 Member | OP Member Joined: Nov 2011 Posts: 7 | So went to the dentist, he said I have to see the oral surgeon. They also do biopsy there. The reason he came up under that term because he does teeth surgery. He noticed heavy dryness in my mouth. He said no glands were swollen, but at the same time he's not sure why my saliva glands aren't producing a lot of saliva from under my tongue. Now I am waiting for my 2nd appt.
Scared now to be honest and having a lot of thoughts going through my head at the moment.
Last edited by mbmk; 11-30-2011 11:18 AM.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Eating anything salty could inhibit your saliva flow.
Most of us with chronic salivary function issues have it as a result of radiation therapy, not as an indicator of OC.
I reiterate, why won't you make an appointment with a qualified ENT?
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Dec 2011 Posts: 1 Member | Member Joined: Dec 2011 Posts: 1 | Hi I am waiting for a biopsy appointment. It has been scheduled for 8th February. I am struggling a bit with the wait as I have been alerted to a large nasty looking painless open ulcer inside my cheek which has developed on a large white patch. I have large white patches on the inside of both cheeks. I am 56 years old. My GP (who has worked as a registrar in the ENT dept of our local hospital for 3 years previous to beoming a GP) says it is lichen planus and must be biopsied. The first time I was a ware I had lichen planus was two years ago when my dentist called in her colleague to take a look. They both said it was nothing to worry about and lots of people have it. The next time I went (in November 2011) she said it had ulcers and she would refer me to the maxofacial dept to get it checked out. I have now seen that I have a number of smaller ulcers emerging which are also painless, and long white hard strings running from the biggest ulcer into my gum which has a hard lump on it. Also my tonsil on that side of my mouth has a few little white bumps on it. I know I will find out in good time but I just wanted to tell someone how it feels to wait and not know what will come next. I am sure it is cancerous. I also get earache on that side. I am really tired all the time but sleep doesn't seem to help much, though I sleep a lot. I feel these things could be psychosomatic due to fear of cancer. Can anyone comment on all these symptoms for me. The truth does not frighten me. My husband is a leukaemia survivor and I believe in miracles! We have been through the hell that this forum describes with his treatments, and he is now on three weekly blood transfusions, six monthly visits to the specialist and living a happy, normal life. | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Hi Carebear! Welcome to OCF! Hey just an FYI it's always best to start your own thread when introducing yourself so that we can focus exclusively on your concerns rather then on someone elses post. It just heads off confusion. Since you have seen medical professionals and have scheduled an appointment you are ahead of the game my friend! Now just be the squeeky wheel to get the biopsy moved up if only for peace of mind. It's hard to put that kind of thing out of your mind until the test and results are in so tell whoever scheduled you that far out they're an insensitive dick. I've always found that I can get just about anything I want by knowing how to ask for it.  Good luck and again welcome to OCF! Eric
Last edited by EricS; 12-27-2011 09:29 PM.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there - I totally agree with Eric, make noise!!!! If it is cancerous it can move very quickly! I wouldn't wait - seriously !! It could very well be something other than cancer, however, I was told they thought what I had was lichen planus too..  and the earache - I had one as well. Though earaches can be caused by numerous things. Have you been checking your lymph nodes? I would call the specialist offer to take any cancellations etc.. Tell them you are very worried. Etc... Good luck! Fingers and toes crossed its not cancer!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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