| | Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | OP  "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | Oral cancer in the news, but this seems to refute a lot of what has been "popular" recently. This suggests that, at least death rates, from oral cancer are declining, well, for certain populations. FWIW my oncologist here in London recently said that oral cancer is becoming much more treatable. http://news.yahoo.com/oral-cancer-deaths-declining-among-well-educated-223417828.html
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Because I assume the more well educated the less likely one is to be a tobacco user so if a well educated person gets OC then it's more likely to be related to HPV which is more treatable than HPV- OC. Just my guess without reading the article.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | This widely reported news article on a recent study showed what we have always known. Oral cancer occurs more in people of lower income and education. The supposition here is that they engage in more risk factors, (smoking and drinking) and that they have poorer access to healthcare and routine screening opportunities so finds are later. They also have lower incomes and less insurance, both leading to a protracted period of not seeking medical advice when things start to go wrong. These socio-economic issue have been at play in many disease states in the US for a long time, and are not likely to change anytime soon. Any progress we have made against treating this disease (evidenced by a decline in the death rate) is nonsense. We are seeing a greater percentage of cases come from HPV16 which responds better to the treatments which have not changed. So while medicine/science would like to claim progress, the only real change is cause, and that cause has a survival advantage. Here is a link that was put up in the OCF news feed a while back about this work, and a comment following it. The studies author is the very prolific Amy Chen who has a propensity to publish often on things we already have a pretty good understanding of. Publish or perish� Please note that I didn't start this post out with yet another ask for people to subscribe (like the 33,000 others that do), to the free, and vetted for relevance and accuracy, OCF RSS oral cancer news feed, I have given up hope that posters will do so. http://oralcancernews.org/wp/study-finds-fewer-dying-from-throat-mouth-cancer-in-the-u-s/
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | [quote=Brian Hill]Please note that I didn't start this post out with yet another ask for people to subscribe (like the 33,000 others that do), to the free, and vetted for relevance and accuracy, OCF RSS oral cancer news feed, I have given up hope that posters will do so.[/quote] Not meaning to hijack, just have to comment.... you of all people should know NEVER give up. Better to be like the water dripping on the rock till it breaks apart.  KC
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Congratulations Kevin, on the fourth anniversary of completing treatment and on being a survivor!
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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