| | Joined: May 2011 Posts: 62 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: May 2011 Posts: 62 | Hi,
I unfortunately may have metastases to the lung, and understand the OCF mantra to biopsy before treatment. I also know that there is a risk of this procedure where the lungs can collapse.
Has anyone gone through this procedure or has any idea on how I would find the best physician(s) in the country to do this procedure?
Thanks,
Chetan
Chetan
SCC, lateral tongue, age 53, Tongue resection & neck dissection 5/6/11; T1N2BM0, RTX (35 sessions starting 6/8/11)/chemo (3x starting 6/10/11) Last cisplatin 7/22. RTX complete 7/27. PEG in 6/9/11, out 8/31/11
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Here is a list of NCI cancer centers. There have been some members who went thru this. Ive read some recent posts from Kelly who had a collapsed lung. http://oralcancerfoundation.org/resources/cancer_centers.htm
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I was going to say hat as well but I figured Kelly might pop in himself - I am still very much hoping you don't have mets. This is the best way to find out for sure good luck! And hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Yes I did just go through this and yes I ended up with a collapsed lung. I had no pain from that, just the inconvinience of having to stay in the hospital for three additional days.
My biopsy turned out "inconclusive". The location was in a hard spot with a blood vessel on one side and a bronchial tube hard on the other. The doctor knicked the blood vessel going in so he ended up getting three samples but only one had tissue (the other two were blood)the tissue sample came back negative for cancer so that was good but they prefer three good samples before declaring it conclusive.
We are going to keep an eye on the spots in the lungs to see if they change in size. Hope they will on the smaller side.
The procedure was not that bad and I should have been out of there the same day. Collapsed lung did not hurt at all so just the wait for it to reattach.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
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