| | Joined: Oct 2011 Posts: 4 Member | | Member Joined: Oct 2011 Posts: 4 | Hi folks. I'm a seasoned citizen, still active as a consultant (business coach) with a thriving national (mostly over the phone and computer) consulting practice. My voice is my livelihood. I was just diagnosed (Oct 28) with a tumor in the base of my tongue. Biopsy will be done on Oct 31 (Talk about spooky!). I'm quite worried about after-treatment loss of speech capability. I would appreciate any advice y'all who have been through this can give me. Thanks. | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Glad you are here, Fred. You've come to the best place for the very latest researched information and compassionate help from people who have been where you are. Usually the base of tongue area has a very high treatment success rate and I'm sure you will hear from others who have had similar experiences to yours. It's good you are getting the biopsy very soon so you will be able to know what's really happening and can start doing something about it. My son had Squamous Cell Cancer on the underside, right side of his tongue and although he had to have a portion of his tongue removed, it was only a very short time that affected his speech. His job (as software developer) requires a lot of phone consulting, too and has no problems with speech at all. And almost five years later, he's doing great!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Oct 2011 Posts: 4 Member | | Member Joined: Oct 2011 Posts: 4 | Thanks, Anne-Marie. Very reassuring. | | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Hi Coach. Our cancers are as individual as we are, and your speaking ability will depend on what treatment is prescribed. There is no way to tell how well you will speak until after all of that is finished. After my 1st surgery, people told me I spoke with a "lisp" but they had removed about 1/2 my tongue. After my 2nd surgery where they removed most of what was left, I now speak like someone who does not have hearing ability. But, we do what we have to do to stay alive.
Having said all this about me, I know others who have had EXTENSIVE surgeries (like Christine) who speak very well and very clearly.
Looking forward to your further posts. Good luck with your biopsy - hope you get the results soon - waiting is hell!!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Fred
A major factor in your post TX speech will be whether or not you need surgery. Very often base of tongue tumors are treated with radiation and chemo with zero surgery. If that is the case, then your speech will probably return to normal (although you may lose your voice at somepoint during TX). If you need surgery, results vary, with some very good and others not so much. Post surgery,a speech therapist can help tremendously. Charm
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Hi Fred! From experience, I can tell you that when someone talks for a living, it usually makes articulation after treatments a little easier. I formerly worked in a large call center for the telephone company. My grammar and articulation needed to be perfect. Even after several surgeries, and without teeth my speech is very good. One thing to remember thru all of this, everyone is different. What worked for me was that my tongue never had surgery so that is what made a huge difference in my situation. I think your profession will help make it easier for you to quickly return to normal speech. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | If you end up needing surgery, get a referral for a Speech-Language Pathologist who has experience with head and neck cancer and have a pre-surgical consult. He/she will be privvy to the surgical plan and be able to tell you what to expect and give you some exercises and tips to see you through the surgery portion - then afterwards, if necessary, you're already hooked up with someone who knows you, your case and your goals to help you get back to where you need to be!
Best of luck Coach!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Fred: Your surgical Team probably has a referal or two for great speech therapists. I started seeing one (With an office located in my Surgeons office) immediately following my treatments and the exercises and techniques she gave me had me talking, eating, and swallowing very well again in a relative short amount of time. In my line of work I am constantly coaching (Speaking) and the first couple of years would be literally exhausting after a solid day of work but nobody (Except me being my own worst critic) could pick up on my speech issues. As mentioned earlier, everyone's different but there's lot's of assistance out there. Best Regards, Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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