| | Joined: Oct 2011 Posts: 6 Member | OP  Member
Joined: Oct 2011 Posts: 6 | my name is sergio, this is my first post. I have had 2 surgeries thus far to take part of tongue out. the first was in july when i was told i had cancer, the left side was taken out. the second was in august and they took out about half of it out. the base is what is left with a flap from my forearm. but i have had the same pain occur again, the kind that hurts so bad it gives you ear aches. i knew it had come back again. even after them taking 95% of it out and having to chemo treatments. not sure how much is going to be taken out but i hope they take it all out. its really aggressive. I never smoked or dipped before. im 29. I have a family and we want to grow. Im scared. but being so positive, i have no choice but to be.
sergio, male, 29
tongue cancer T3, PEG tube, Flap from forearm...
Male, 29YO, Non-Smoker/Non-Tabocco use
DX: 7/11 with T4L1 tongue CA
Surgeries: July/11- 1/3 glossectomy,
Aug/11- 1/2 glossectomy w/reconstruction (flap from forearm), Neck Dissection (47 nodes, 1+), PEG
Regrowth after 1 month of chemo -10/29/11
Chemo: 9/13/11, 10/4/11
Radiation w/chemo: 11/11
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hello Sergio:
I just wanted to welcome you to the Forum; I don't know about your type cancer, but there are a lot of others on the Forum with that experience and knowledge who will be joining in to help you. I can offer my prayers that you'll soon find out the solution to your hurting and that you will be pain free. It sounds like you have already been through a lot, but don't give up. Others have had like experiences. Bless you.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Sergio,
Where are you being treated? What hospital?
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Apr 2011 Posts: 267 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2011 Posts: 267 | I'm sorry to hear that you are having another surgery. Have you had any radiation? It's unusual for oral cancer patients to have chemo without radiation. I wish you a full and speedy recovery.
Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
| | | | | Joined: May 2011 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2011 Posts: 62 | Sergio,
wish you all the best. You will do fine and we are all here to support you!
Best Regards,
Chetan
Chetan
SCC, lateral tongue, age 53, Tongue resection & neck dissection 5/6/11; T1N2BM0, RTX (35 sessions starting 6/8/11)/chemo (3x starting 6/10/11) Last cisplatin 7/22. RTX complete 7/27. PEG in 6/9/11, out 8/31/11
| | | | | Joined: Oct 2011 Posts: 6 Member | | OP Member
Joined: Oct 2011 Posts: 6 | Baylor University Medical Center in Dallas. The Sammons Cancer Center.
Male, 29YO, Non-Smoker/Non-Tabocco use
DX: 7/11 with T4L1 tongue CA
Surgeries: July/11- 1/3 glossectomy,
Aug/11- 1/2 glossectomy w/reconstruction (flap from forearm), Neck Dissection (47 nodes, 1+), PEG
Regrowth after 1 month of chemo -10/29/11
Chemo: 9/13/11, 10/4/11
Radiation w/chemo: 11/11
| | | | | Joined: Oct 2011 Posts: 6 Member | | OP Member
Joined: Oct 2011 Posts: 6 | Because it is an aggressive cancer w/o any risk factors my oncologist wanted to do something different. He started me out with full chemotherapy rounds (2 rounds) prior to starting radiation. Radiation w/low dose chemo will start next week.
Male, 29YO, Non-Smoker/Non-Tabocco use
DX: 7/11 with T4L1 tongue CA
Surgeries: July/11- 1/3 glossectomy,
Aug/11- 1/2 glossectomy w/reconstruction (flap from forearm), Neck Dissection (47 nodes, 1+), PEG
Regrowth after 1 month of chemo -10/29/11
Chemo: 9/13/11, 10/4/11
Radiation w/chemo: 11/11
| | |
| Forums23 Topics18,280 Posts197,206 Members13,413 | | Most Online2,371
Sep 11th, 2025 | | |
|
