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#142234 10-30-2011 04:43 PM
Joined: Oct 2011
Posts: 18
trese Offline OP
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Joined: Oct 2011
Posts: 18
Ok , yes I've seen 9 doctors and almost all said something different! Now I'm alittle frustrated because my symptoms are not going away, but doctors refuse to run more in depth testing. I've been treated for thrush twice and antibiotics just cause they don't know what's wrong with me and they look at me like a 28 yr old can't have any major condition so their refusing testing..my last visit was Friday to a oral surgeon and I've seen ent twice dentist once and primary 5 times and 3 er doctors...I promised to take the final doctors word for it but is his "word " good enough ..could my symptoms be something else well I won't never know if they refuse to do anything else besides basic bloodwork. Well the oral surgeon said I have leuopkia but how does he know he didn't do biopsy ??he refused to do it because he stated it would be very painful and he didn't see any open lesions...so my symptoms are white coated tongue for 2 months (he's now calling leuopkia) pain in left ear and irriation in the tongue he said the irriation is probably because for some reasons the paplie on my tongue is enlarged! But he doesn't know why????? So I don't know what else to do if it isn't oral cancer what could it be what test can I have done since a biopsy doesn't seem to be in the near future. Thanks for all the help in advance

Joined: Oct 2011
Posts: 18
trese Offline OP
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Joined: Oct 2011
Posts: 18
Also i ve had this pimple on my bottom lip for 2 weeks and it isn't going away you can barely see it but u can feel it because its hard.

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Trese,

I do not see any mention of you seeing an ENT (Ear, Nose & Throat) specialist. That is the type of doctor most likely to agree to do a biopsy. See if you can get a good ENT in town to see you.


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
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The dentist isn't going to biopsy leukoplakia which almost every smoker has to some extent, and dentists see all the time. You don't need a biopsy to diagnose something he sees every day. The little hard spot on your lip is also likely something very common, a mucocele, which you have described to a T. It's just a clogged micro pore in your mouth which has thousands of them in the tissue. Google it if you need to know more about it, but they resolve on their own, usually after forming (finally) a little clear blister. The papilla on people's tongues gets enlarged sometimes when it gets irritated or there is a bacterial issue at play, again not a sign of cancer.

So your post from early today is essentially a repost of your original post to the forums some time ago. Once again I tell you that we are survivors and patients, we cannot help you with a diagnosis. Someone has to look in your mouth, (which you have had lots of qualified people do), and tell you it is cancer before any of our knowledge and experience is going to be useful to you. We'd be happy to help you further, IF you have the misfortune to join the cancer club. Until then, searching for answers on web forums isn't going to get you what you obviously want, a biopsy. Best of luck in getting that, if you do, it will likely put all the cancer thoughts to bed. If you don't you are going to have to live with the opinions of the may doctors you have already seen. Re asking your question here again isn't going to change anyone's ability to help you further. Good luck.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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