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EricS #139337 09-06-2011 04:39 AM
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Spunds Ike a terrific idea especially if you are into working out to begin with - since it would help you to bring a passion to the job, and be an inspiration to others. Go for it! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #139359 09-06-2011 12:11 PM
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This is a great idea! Who better than someone who's been through treatment to understand what people need to get back to feeling strong? I think you would be great at this.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
msmac #139902 09-13-2011 01:11 AM
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Hey guys,

Thank you all very much for the support! Sorry I didn't get on here earlier to reply sooner. It's been a busy week between work & uni, amongst other things. I've definitely been keeping myself busy which is a good thing I think.

I'm meeting a guy also called Dave tomorrow afternoon after work. He's had a similar idea. He was diagnosed with a different cancer 3 years ago, and is now a personal trainer. They have an organization that fundraises to cut costs to cancer patients, plus he also volunteers at post-cancer exercise clinics. Hopefully I'll get some answers as to how viable the idea really is. It should give me some answers.

I'll let you know how I go,
Cheers!

Dave


21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
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David if I haven't told you yet... I think you're amazing!!! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #139942 09-13-2011 02:46 PM
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Hey Dave,
I would have appreciated having had my physical therapy done by someone who has been there done that!
This would have been great especially while still in hospital and not able to communicate other than by pen and paper. One of my bad memories was of 2 trainee PTs doing my treatment only once thank goodness.
It was so traumatic for me as there was nothing I could do about it cry
Good luck reaching your goals and hope Dave2 can point you in the right direction.
Look forward to seeing how it goes.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #140047 09-15-2011 10:21 PM
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Cheers Cheryld! I read your post on my phone on the way to work the other morning. It gave me a nice extra lift. Thanks heaps smile

Hey Gabe. I definitely agree with you there. Every time I speak to a fellow Cancer patient, whether they're in remission or currently fighting.. There's just an instant bond. There's no barrier, and we can all relate to different experiences. It's very unique.

I had some personal horror stories as well. It was definitely hell, some of the experiences I've had. Some of them I guess I can't really post to a public forum.

Getting back to the Personal Training. I've met Dave #2 smile It went quite well. He's a pretty inspiring guy. He was diagnosed 3 years ago. He volunteers for cancer council rec days weekly, and has a growing client base. I've got alot of tips and ideas off him. He has an organization that fundraises to make personal training cheap for Cancer patients. It's called Live Forever, and it promotes healthy living. He took me for a session afterwards, and it went well.

He's growing his client base, and it's possible that I will be able to work with him after my course ends. It's a course that's held in fairly high regard. I have an interview on Sunday with a guy from a fitness organization, to go through details on my course. I've already spoken to the guy on the phone. We had a good chat, and he seemed quite interested in having me on board. Signs are looking good that i'll be starting the course soon.

I've kind of embraced what has happened to me. It's been good to meet people my age personally with other cancer experiences, and help each other out. I'm hoping to make the most of my 2nd chance, and do something I have a passion for. Because who knows what's in store for tomorrow.. I'm hoping to turn what happened to me into something positive.


21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
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I am sure your parents and family must be so proud of you.
Will keep it short and sweet and say the first thing I thought of when reading your post was;
What doesn't kill us makes us stronger." -Friedrich Nietzsche
Good luck with your achieving your goals but somehow I just know you will make it happen.
Way to go Dave cool


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #142092 10-26-2011 04:14 PM
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Hey guys.

I'm just jumping on quickly. I'm about to head into the city (Brisbane) as it is CanTeen's 'National Bandanna Day' Launch today. They are an organization that's helped me out heaps during my recovery since treatment finished. I'm the patient member representative for the qld division so i'm telling my story in front of a crowd today. Little bit nervous ! But I should be ok.

For anyone in Queensland or Australia, there may be some short clips on the channel 10 news today and/or tonight. Most likely the 6pm news. Keep an eye out for my mug if you're watching !

I have to go.

http://www.canteen.org.au/
http://bandannaday.com.au/

Cheers everyone,

Dave


21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
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"OCF Canuck"
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Hey here good luck, and have a great time,you'll do amazingly well!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #142105 10-26-2011 06:50 PM
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Posts: 1,301
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You will do just fine Dave.
Will keep an eye out on tonights news for your mug grin
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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