| Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | OP "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Back from vacation, the garden has been torn out, the flowers are slowly freezing to death...winter is coming. There have been a few changes in the surgical plan since my last posting. A couple of additional referrals have completely nixed the idea of TMJ replacement; there is simply too much adjacent oesteonecrosis to take the risk. The "final" plan now is to do a modified temporal/mastoid process resection. They will effectively be removing a baseball sized portion of my skull around and above my ear, and replace it with some form of acrylic material, not dissimilar to a bowling ball, from what I'm told. Once the necrotic bone is gone, they will repair the damage to my inner ear and hopefully restore some hearing. Now the challenge is going to be "when"? it will involve surgeons from two different cities, and coordinating schedules is going to be the challenge. All I have to do is drive 9 hours and show up for the party! I'll update things when we finally have a date Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Sorry to read about your upcoming surgery Wayne but glad you now have a final plan. Best wishes with it all and I will be looking to hear about the date and your progress later on. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yum sure you're in good hands!!! Where are you having your surgery? Take care and god bless, he's seen you this far - he'll see you through the rest!  (sorry if you're not religions! :))
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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