| Joined: Nov 2010 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Nov 2010 Posts: 38 | Mom has always had a J/G tube and we have clogging issues so we finally changed the tube to a PEG. It's narrow though--almost narrower than the J tube, so I have 2 questions. Bottom line is I need some recs for a new formula that one uses for stomach feeding.
1) Since her food is now going directly in the stomach, can we increase the rate? The tube is really narrow--I don't know if increasing the rate would clog the tube.
2) The formula she used with the J tube was Osmolite 1.5, which I understand has partially digested foods making it easier to be absorbed through her intestines. It would seem strange to put this formula in her stomach, although her Primary said it was fine. She is complaining of stomach cramps since she has had the new tube. She also needs something with calories.
Thanks for helping. It's kind of pathetic that I know of no place to get advice but here.
Mom age 84 dx stage IV papillary cancer mandible 10/10; non-smoker, drinker, HPV-. Surgery 2/16/2011; mandibulectomy. 0 pos lymph nodes, has been in long-term hospital since March 2011. Returned home 8/11, permanent PEG tube.
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Hi Trishga: I'm sure others will join in soon with more information for you - I had a PEG tube, but cannot remember the formula I had (lot of help I am) but I think any kind of formula (Carnation VHC Instant Breakfast, Boost) would work, along with lots of water. I'll search back and see if I can find the formula the RO and chemo drs. recommended, and if so, I'll send another message. My insurance paid for it, and it was delivered to my house. I just wanted you to know someone read your post, and others will soon. A big hug for your Mom (and you). julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Trishga: I believe it was Jevity that I used at first. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Be care with the Carnation VHC. Its thick so you need to add a can of water per can of formula. What speed is your mother using now? If she has stomach cramps then right now is not a good time to up the speed, it will make it worse. I would try adding water to the formula and slowing it down a little. After feeding your mother should sit still for about a half hour to help her with the digestion. That should help her stomach cramps. There are many different prescription formulas that can be used. Make sure you discuss all this with whoever is prescribing the formula. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Jevity comes in different calories. Jevity 1.5 has worked great for me for two years. But I still dilute each can with either water, coffee or iced tea. The Peg tube should have somewhere on it how big it is. The measurements are in units called French (FR). I started out with a 12 FR, then 14 FR and now have a 16 FR. I didn't go bigger since I want to go to a button and every button has a 12 FR anti-reflux valve even if the tube is a large 24 FR (I think that's the usual size of a combo J and G tube. The smaller the French size, the more likely it is to clog. You sound like a great caregiver Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | The J/G tube I have always used is 18Fr. I asked for the next size and my doc said I had the largest one. Maybe he just didnt have any larger ones available???? Who knows, if I had the next size maybe this wouldnt wear out every 2 months. Trish, thats one advantage of a peg tube they seem to last a little longer than the J/G tubes. Good luck to your mom with her new peg.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2011 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Mar 2011 Posts: 26 | My husband just switched from jevity to vital which is also made by Abbott. The rep recommended it because it is easily digested, has lots of omega 3s, and prebiotics. I would think your doc or dietitian would ultimately have to prescribe so that insurance will cover it. We go for a slow drip so the tummy stays much happier! Your mom will end up loving the PEG!!! It is so easy.
Best of luck, Robinleigh
Robin, caregiver to husband, Andy (57 yo non-smoker) 1/2011 dx scc stage 4 -primary- tonsil/bot 2/2011 surgery/rnd/ imrt rad/ 3 cycles cisplatin 6/2011 recurrence - mets to bone 7/2011 tx carbo/erbitux/5 FU- pet showed disease progression 11/2011- present clinical trial
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