| | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | While we haven't made much noise about it, several months ago we ended up in a lawsuit with - of all people - MD Anderson Cancer Center, over a trademark. OCF has used "Make oral cancer history" since 1999. MDACC has owned "Making cancer history" since about the same time. Long story short, we came to an agreement with them for a decade to continue to use our version of the idea on our wrist bands, but other uses (like the Make Oral Cancer History burgundy T-shirts) have to go. I wasn't going to spend one cent of any donor's money defending a saying (even one which is rightfully ours), vs spending their money to serve our cause. There's a lot I could say here about MDACC that I will not - along the lines of don't they have something better to do that screw with an organization that sends them millions of dollars in patients and more. But I'll refrain.
So here's the deal. We have several hundred T-shirts, right now in all sizes, in stock. It costs us about $5 to send one to someone, and we have a bit more than that in making each, ultra thick, high quality, shirt. We have a few weeks to unload them, and a shorter time to get them out of our web store and off line. Jamie is going into the store this afternoon to change the purchase price with shipping included to $10.00. We only loose a couple bucks apiece at that price, and I would appreciate anyone who is inclined to help us, anyone who wants to see the Oral Cancer message get out, to please buy one at this discounted price. In a couple of weeks the rest are going to Goodwill, never to be made again. It's a screwed up situation, but going to battle, even with my own money, with a multi billion dollar entity, even if I win, diverts my attention from important things, and spends money on something that we can carry on without.
By the by� we are in need of a new SHORT saying. The wristbands will stay the same for the next decade, but all other things need to change now. Send your suggestions to me.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | These are really nice tshirts!!!! Its a shame they have to be discontinued!
These tshirts were originally designed to be worn when attending the OCF walks. When a few OCF members get together, its a nice way to look like we are part of a team. Jerry and I wore the tshirts at last weekend's OCF walk that Susan Lauria put on in NJ.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I want 10 medium and 10 large. I can use them at my screenings. How do I order?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Excellent idea, David!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Jamie will have the price reduction in the store just after lunch CA time today. So when you see that it has dropped to $10.00, please just place your order in the OCF store. Also if you are ordering multiple shirts like David, please call it into Jamie, and we will work out a better price. The shipping will be less for us and we'll pass that along. Here's the link to the store item. http://www.ocfstore.org/Make_Oral_Cancer_History_T_Shirt_p/makehistory_tshirt.htm
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Their attorney has told us that any shirts we are in possession of on December 31 must be DESTROYED. Can you believe that? Not given away, not taken to Goodwill, Destroyed. This is what happens when you have a multi billion dollar entity, that has great doctors, but is also run as a business by a bunch of bureaucrats, and has a staff of attorneys that don't give a rats ass about people, but about the bottom line. We will see that long before their drop dead date that some good has come of the money that was spent on these shirts�. destroyed my ass.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Placed my 20 shirt order with Jamie yesterday.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | There are still lots of burgundy tshirts available. Only small, medium and large sizes are left. These are great tshirts!!! For $10 you cant go wrong, that includes S&H. Check out the facebook photos of members wearing them. Get them while you can! They need to be gone by the end of next month. "Make Oral Cancer History" burgundy tshirts OCF on facebook
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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