| | Joined: Feb 2010 Posts: 79 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Feb 2010 Posts: 79 | Just loved surprising you today! What an awesome job you did! And now I can say I've met you!! Can't wait to see the pictures!!!
Cathi
57 when diagnosed. Heavy smoker. Social drinker. Diagnosed 7/9/09 with tonsil, tongue & neck cancer. Chemo induction (Cisplatin, 5FU & Taxotere) & 35 radiation tx + 7 Carboplatin.
Head and neck CAT scan on 1/15/10 shows no cancer.
1/27/12 First PET/CAT scans in 2 years - All clear!!
recurrence mid-2015
OCF supporter and avid OCF CO and NJ walk attendee with worldwide friends
*** 1-7-16 passed away unexpectedly ***
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Susan did it again!!!! She worked her butt off and with the help of a few dedicated volunteers, they created a wonderful event today. There was even a surprise guest, Cathi came all the way from Colorado to attend the walk. It was so nice to meet Jodi (Susan Cotten's sister)and Ann with her family. I had a good time talking with Jerry, Katie and Suemarie and I got to meet many new friends too. Luckily the weather held out. Even with it being a cloudy overcast day that looked like rain any minute, there still were about 150 people who attended. Everyone enjoyed themselves. What a perfect way to honor David's memory!
Great job Susan!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Looking for the "like" button  Great to hear that it was a big success.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | HOW COULD IT BE ANYTHING ELSE BUT A SUCCESS WITH ALL THE WONDERFUL PEOPLE WHO CONTRIBUTED TO THE WALK. CONGRATULATIONS - SOME DAY I HOPE TO MAKE IT TO ONE OF THE WALKS AND MEET YOU ALL IN PERSON.
HUGS FOM JULIEANN
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Cathi I still can't believe you came out to the walk!!! I wish we had more time to talk, but so happy you got to meet other OCF members and survivors!!
You def got me!!! But I love surprises for sure!!!
Ann is so sweet too, so glad I got to meet her as well!!
And what an amazaing fundraising job you did, over $1800!!!! Wow!!! THank you from the bottom of my heart!!!
Have a safe trip home!!!
I will post the pics when I get them from my photographer!!
Take care
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | A little late, but never too late to say what a great event it was. Christine was a fabulous speaker. So nice to meet Ann, Lori and Cathi. Old friends Christine and Suemarie...it was great catching up with you.
I brought all my pictures collected over the years and you were all there with us in spirit.
I do have to take credit for my anti-rain dance working so well. Since I have retired, I walk every day. But that walk, was more than I usually do. Keeping up with Ann's 21 year old son was tough, but I did it.
A special thank you to those that sent me checks and donated through OCF.
Great job, as usual, Susan. You, Harry and your family are awesome.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Jerry, it is always great to see you!!! You look fabulous!!! Retirement def agrees with you!!!
And raising over $1900 for OCF is totally amazing!! You and Cathi Carpenter were unbelievable with fundraising!!! Thank you from the bottom of my heart!!
And yes your anti-rain dance worked big time!! I still cannot believe how nice it was!!
Maybe philly walk and NYU walk this year?? I am going to try to make sure they are on diff days!!
Get some rest and hope you are feeling better!!!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Feb 2010 Posts: 79 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2010 Posts: 79 | I can't tell you all how much FUN it was to surprise Susan and Christine!! What an event! Got to ride in a police car with Susan's mom!! LOL!! Wish we had a picture! I was in the front and she was in the back!! LOL!! Both Susan and her mom are just awesome!! And look on Facebook as there is now a picture of me in my Tshirt from our Colorado walk signed by all of my doctors! I am now going to frame it!! This is such an amazing group of people and if it wasn't for cancer, I wouldn't have you in my life! Looking at the bright side of things!!!
Cathi
57 when diagnosed. Heavy smoker. Social drinker. Diagnosed 7/9/09 with tonsil, tongue & neck cancer. Chemo induction (Cisplatin, 5FU & Taxotere) & 35 radiation tx + 7 Carboplatin.
Head and neck CAT scan on 1/15/10 shows no cancer.
1/27/12 First PET/CAT scans in 2 years - All clear!!
recurrence mid-2015
OCF supporter and avid OCF CO and NJ walk attendee with worldwide friends
*** 1-7-16 passed away unexpectedly ***
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | I was very upset that I had to work and miss the event but I am extremely happy that my sister Ann stepped out of her shell and came out to meet you guys. Having her come home and tell me about the great people she met(which I always knew you guys were) and the amazing time she had made my day. Susan you did an awesome job and I really really hope I can make next years.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Susan, put in NOW for time off next year. The date is Sept 22, 2012. I know Susan will be there and so will I It would be great if you would come with Ann next year.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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