| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Awesome! Check there are some out there that have even higher protein - for me one and a half scoops of the protein powder I use mixed with 4 tablespoons of cottage chees, almond milk, fruit, and flax oil yields about 50 -60 gms of protein, I let my intake during thte day take care of the rest.. Chocolate is not bad taste wise. I would avoid heavily sugared products though... Try something with stevia or xylitol as a sweetener (all natural plant based sweeteners that have no impact on blood sugar!, sugar promotes thrush, and feeds cancer (Pet scans work by reading sugar uptake in cells. Cancer cells are sugar hogs, no sugar less growth? ) just a theory but one that has been studied. High carb products that have simple sugars are the worst, complex carbs like fruits are better. There are some good ice-cream products out there with no sugar and some great vegan proteins as well. I'm still going through them trying to find one that has no grit (sun warrior is great - very fine and blend able) and one that has a good taste (mrm veggie protein - chocolate) there has to be one out there that has both !!! I'll find it  in the mean time I continue to experiment on me! Good luck, glad your dad is doing okay! Hugs
Last edited by Cheryld; 08-25-2011 04:49 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Chocolate still tastes bad to my husband, but fortunately fruits and vegetables taste good. He uses Now Sports whey powder with natural vanilla with his lunch protein shakes. His department has a kitchen with a blender - he mixes milk, whey powder,Benefibar, a Carnation Breakfast Essentials packet, and one or two of the individual serving Musselman's applesauce cups. It still takes him a long time to eat, so a protein shake for lunch works well. I mix the whey and benefibar up, and portion it out in baggies so its easy for him at work.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Awesome!!! As long as he's eating it that's great - I still have a power smoothie for breakfast!! Chocolate with banana - I toss in an organic all natural fruit juice that has real fruit and vegetables in it - it tastes great - I can't taste sweet but chocolate is okay! whatever works!
Last edited by Cheryld; 08-25-2011 04:51 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | That's just so bizarre about the tastes. Cheryl, can you whistle? That's one of the things that just came back for my husband. He puts seed out for the birds in the morning, and whistles to let them know its there - the blue jays in particular respond and come diving at the feeders. He found it very depressing when his whistle was out of whack with the mucositis, and is glad it has returned.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Not yet - but almost! I can form a whistle nd make a little tweet but no real whistle but then I was never. Good whistler!  take care! And yes taste is very individual!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | ...tomorrow i'll let him know the creams from horny cows eric. that's precious.
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: Oct 2011 Posts: 6 Member | | Member
Joined: Oct 2011 Posts: 6 | i use scandi shakes...your dietician will know about that
Male, 29YO, Non-Smoker/Non-Tabocco use
DX: 7/11 with T4L1 tongue CA
Surgeries: July/11- 1/3 glossectomy,
Aug/11- 1/2 glossectomy w/reconstruction (flap from forearm), Neck Dissection (47 nodes, 1+), PEG
Regrowth after 1 month of chemo -10/29/11
Chemo: 9/13/11, 10/4/11
Radiation w/chemo: 11/11
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Speaking of tastes, and this may be going off track a bit, but do any of you out there have, or had a putrid sweet taste ALL THE TIME, from morning until night. I wake up with it, and so far haven't found anyone else who has it or experienced it. Having every test known to man (not even associated with oral cancer or radiation, etc.), but to no avail. Just wondering since tastes are mentioned here. Thanks,
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | No sorry... I wish I could help... Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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