Man this is sooooooooooooooooooooo what I needed. Just ate my first can of chicken noodle soup in a week. Dry chicken chunks and all. So got me some carbs, some protein and some fluids! Praise God that he gives us sharp Doctors when we really need em!

I'm so glad there was someone who helped! There needs to be a coordinator who is in charge of making sure patients don't get put off like that. I talked to my ex's ENT about it...we saw some of that type of behavior. I think sometimes a doctor's ego and/or workload get in the way of relinquishing authority for patient care but prevent him or her from accepting responsibility when a patient has a problem. It is tiring to get the run-around.

I hope you are feeling better. Please take extra care when you are up and find you are unsteady on your feet. No need to have an accident while you are trying to recover from treatment. Sorry, I'm a mom...we worry...it's not just a job, it's a vocation.

So glad you got taken care of. Feel better!

You guys are great. And thanks Sandy, I totally need a Moms worry instinct these days. There's something special and insightful about a Mothers preservation instinct for her kids.

I am feeling pretty decent now. The steroid is just what I needed. I just can't believe my Oncology pros didn't see it coming and set me up for the scripts I needed ahead of time. I mean they really dropped the ball and put my life on the line. Not much good coming from cutting edge cancer treatment only to succumb to side effects. Not cool at all.

Happy to provide some well-deserved mothering! You have a surrogate mom any time you need one--no need to even let me know...moms can tell when they're needed (and know to ignore the fact that sometimes we aren't needed!) But, in case you are in need of some e-TLC, just let me know!

Sandy

ps. I gotta admit, I was incredibly relieved to hear about the chicken soup! Now, get plenty of rest, hunny, and no late nights for you...you've got some serious recovering to do!

I am so glad you listened and went to the ER. Thats what they are there for! After we finish rads, we all get a sense of just being 'dropped'. Its pretty common for docs to miss some meds that you need after finishing your treatments. My docs thought I wouldnt need anti nausea meds any more but I sure did.

Hope you can stay on track now that you are feeling a little better. Please dont wait til you feel so bad to go to the ER. Good luck with your continued recovery.

yea Christine, it just really snuck up on me this week. A few days without enough fluids and BAM downward spiral.

Also, I am super pleased to report that I just ate an actual pulled pork bbq sammich and I could taste it. Had to take very small, very well chewed bites... but I did it! If I can keep the swelling under control and the fluids up, I think I might be turning the corner.

ok off to bed as ordered and sleeping in tomorrow. Thanks guys, you really have been some of the best support I have had through this. All of you. This place is full of saints and angels sent by God to comfort the weak and weary. I will always be grateful.

Great to hear you're doing better!!! I wrote a longer message on your other post (doctor relationship) so I just wanted to say congrats on getting back on track!

Hooray for the good ER doctor! Glad to hear your are on the mend!

much better day today. I was actually able to stretch my pain meds to every 7 hours instead of struggling to get to 4. Decadron is doing the trick. I think the dose could be just a touch higher. Not much. They got me on 8mg daily, I think 12 would be better. I only got ten of them with this script tho so I'm going to talk to my MO in the morning and let him know I think a little boost will do and I will drop down to 8mg when I feel ready. I should be able to measure it pretty good based on how I'm swallowing.

I did get another cat scan of the area to measure the swelling and there were no new masses. Whatever that means, whether the old one is still there or not.. should have asked. I think I will call and have them send that scan to my MO and RO for the record so they can look at it to let me know what that meant. It wasn't a contrast cat though so...eh idk. If the mass isn't gone, total laryngectomy is next, which should cure this but... Lord knows I don't want to lose my voice. I'm going to focus on healing instead of that though. There is time enough for bad news. I want 6-8 weeks of no worries for once.