| | Joined: Sep 2009 Posts: 31 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Sep 2009 Posts: 31 | When my radio finished I had awful lower back pain & slight skin discolouration there. Once the pain went I never really thought about it until I noticed my back in the mirror, the skin discolouration has gotten much worse, a dark brown, but no pain. Ive seared the threads for this & cant find anything so was just wondering if anyone else had had this or had any idea of what it is?
Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue.
Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | In the past 4 years, I have not heard anything like this from another member.
Maybe the table you were on created a problem with your back. For me, I was very uncomfortable and had a wedge placed under my knees. If I had to lie flat, I wasnt able to as I have arthritis in my lower back. Was there something you were laying on that bothered your back?
This next idea may be a bit far fetched, but I will throw it out there and you can think about your treatments. When I went thru radiation, I had a spot on the lower back of my head where the radiation exited my body. It ended up being a bald spot about the size of a quarter. Is it possible that the angle of your radiation would have made it exit your body thru your lower back?
At least you are not in pain.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2009 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2009 Posts: 31 | Hi christine
Thankyou I hadn't thought if that, I have my checkup next week so I will ask, although my doctors response is normally " it's been over a year you should be fine now"!!!
Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue.
Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | [quote=ChristineB] Is it possible that the angle of your radiation would have made it exit your body thru your lower back? [/quote] Christine, this is probably impossible for head and neck radiotherapy! I may be wrong as well.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I kind thought it was pretty far out there, myself. Im one who always tries to figure things out. You never know the unusual angles they could zap someone from the top of their head down ending someplace other than their head. I figured I would throw that idea out there and see what others would say. I really think it could be related to how the patient is placed on that tiny little table. I know I was very uncomfortable and it bothered my back a great deal.
PJ... It can take a full 2 years for a person to fully recover from something as traumatic as chemo and radiation. Your body has been thru the war and rebuilding it is a long process.
I wish you all the best. Please let us know what your doc says net week about your back.
Be well!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2009 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2009 Posts: 31 | Well my consultant says its nothing to do with the radiotherapy & advised me to see my GP, who is scratching her head over it! Main thing is that its nothing to worry about, Ive just got to keep an eye on it, record it & if it get worse to go back!
Thankyou for your thoughts
xxx
Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue.
Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It sounds like a blood pool or a Mongolian birthmark - but you might be a tad too old for that as they are supposed to go away as you get older! sorry I'm not more help, glad it's not a big deal!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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