| | Joined: Jun 2011 Posts: 147 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jun 2011 Posts: 147 | Hi Everyone,
We had fantastic news today at Eddie's first follow up appointment. We saw the ENT and chemo doc. They were both happy to see Eddie's progress. They both were joking about how he does not even look like he had treatment. His blood work showed that his counts are a little low but not dangerous. His white count is coming up and platelets are still a bit low but that helped him to understand why he is still tired some days. The best part came when the ENT scoped his throat with a camera through his nose (yuck) but she said that there is absolutely nothing there any longer and she could not feel anything in his lymph nodes either. We were thrilled. We still need to see the PET scan in November but were very encouraged today.
This has been a long haul for him but we know that they will follow him for the next year and monitor his progress. We are relieved for now.
And I am finally emerging from my role as a nurse. Now I am just a nutritionist and wife.
Thanks to all of you who post and support me. For those that are new to this disease, there is a light at the end of the long, dark tunnel. Stay positive and fight the good fight. My Dean said to me today when I told her the news that my husband is a fighter from the Bronx and that is why he kicked the sh*t out of this disease. She expected nothing less. Do the same for yourselves, fight and expect nothing less. Crying so have to go.
EllenB
caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ellen, CONGRATS!!!!!!
You guys did such a great job, other members will think fighting cancer is an easy thing. Im so happy that it went by quickly and relatively easily for both of you. Im sure after getting such a great check up that his scan in Nov will be equally as exciting. Best wishes with your husbands continued recovery. Be well!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's soo awesome. Hugs to you both!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Great news and tell him we all congratulate him enduring this barbaric Tx. We also congratulate you for being his great caregiver, without whom, he would not have fared so well.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Excellent news, Ellen! Brightend my day.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2011 Posts: 147 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2011 Posts: 147 | Thanks to all of you. The support I received from this site and your wisdom helped me to get through all of this. I can only wish that those who are entering this difficult journey will stay strong and listen to the wonderful advice given here. The medical world makes advances every day so that cancer will soon lose the battle completely.
I thank you all from the bottom of my heart.
EllenB
caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 |
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | WONDERFUL NEWS, ELLEN. I pray that things keep getting better and better for you and hubby. You both did "good."
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Aug 2011 Posts: 78 Likes: 1 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2011 Posts: 78 Likes: 1 | Wonderful news!! Congratulations!!!
Sally, 38 years old
T1N0M0 Left Tongue Lesion, Moderately Differentiated
10 + year history Leukoplakia, Mild Dysplasia before cancer diagnosis 8/2011
Scheduled Partial Glossectomy & Neck Dissection 9-17-11
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