| | Joined: Jul 2011 Posts: 4 Likes: 1 Member | | Member
Joined: Jul 2011 Posts: 4 Likes: 1 | Research: Looking for oral cancer patients with history of Lichen planus, leukoplakia or nail psoriasis.
Hello, I am a oral cancer survivor (3yrs) and looking for people with similar history as me.
I was 1st diagnosed with Lichen planus in the tongue, one and a half years later I had tongue cancer stage 4, it had spread to the liphnodes. I went through surgery, tongue reconstruction, radiation and chemo. I had psoriasis in the nail for the past 6 years and I am always wondering if there is something going on with my immune system.
Thanks
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there I never have had psoriasis, but I did have a leukoplakia amend what they thought was lichen planus - my story is much the same as yours but my staging was two - with a spread to one lymph node. Mind you this had been going on for 10 yrs almost. Congrats on the three years - that's awesome!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2011 Posts: 4 Likes: 1 Member | | Member
Joined: Jul 2011 Posts: 4 Likes: 1 | HI Cheryl, thanks for your reply, I have some new white spots on the tongue, I had a biopsy done last week, it came back as "dysplasia" so I am waiting for a Dr appointment for their plan. | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | They do have other treatments including proton therapy an laser therapy they are using - good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
| Forums23 Topics18,286 Posts197,238 Members13,433 | | Most Online2,386
Nov 19th, 2025 | | |
This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
| | |
|
