| | Joined: Jul 2011 Posts: 4 Likes: 1 Member | OP  Member
Joined: Jul 2011 Posts: 4 Likes: 1 | Research: Looking for oral cancer patients with history of Lichen planus, leukoplakia or nail psoriasis.
Hello, I am a oral cancer survivor (3yrs) and looking for people with similar history as me.
I was 1st diagnosed with Lichen planus in the tongue, one and a half years later I had tongue cancer stage 4, it had spread to the liphnodes. I went through surgery, tongue reconstruction, radiation and chemo. I had psoriasis in the nail for the past 6 years and I am always wondering if there is something going on with my immune system.
Thanks
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there I never have had psoriasis, but I did have a leukoplakia amend what they thought was lichen planus - my story is much the same as yours but my staging was two - with a spread to one lymph node. Mind you this had been going on for 10 yrs almost. Congrats on the three years - that's awesome!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2011 Posts: 4 Likes: 1 Member | | OP Member
Joined: Jul 2011 Posts: 4 Likes: 1 | HI Cheryl, thanks for your reply, I have some new white spots on the tongue, I had a biopsy done last week, it came back as "dysplasia" so I am waiting for a Dr appointment for their plan. | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | They do have other treatments including proton therapy an laser therapy they are using - good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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