| | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) |  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I am thinking about going to the Minneapolis Walk on October 22nd - it is about an 8 hour drive for me. Anyone from here thinking about going to this one? Let me know - would be thrilled to meet someone from the forums.
Donna
Last edited by Pandora99; 09-09-2011 10:38 PM.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Darn it Donna!!!! I wish this was one of the walks I was going to. This walk is being put on by a group of wonderful dental hygienists. I love seeing professionals get involved with spreading the word!
I wish you would be able to attend the walk in Andover NJ that Susan Lauria puts on. She has it every year to honor her brother who sadly passed away much too young from OC. There will be several OCF members attending. Jerry, of course Susan Lauria, Suemarie, Ray, Palmtree (Katie), Ann, Melissa who was on Dr Oz show, and several others may attend. I will be Susan's speaker this year.
This walk is always a big success. I hope anyone who is within driving distance will take this opportunity and come out to support OCF. After all that OCF gives us, we can take a few hours out of our busy schedules to help give back.
Anyone attending the NJ or Minneapolis walk has time to order the "Make Oral Cancer History" tshirts. Wearing these tshirts helps to spread the word and also makes it easy to find other fellow OCF members. The more burgundy tshirts there, the better! It makes a great visual statement when a bunch are of us are all together wearing the burgundy shirts.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Pandora, hope you can make the MN walk, they have been working very hard!!!
Def order a shirt from the OCF store, you will def stand out so other members can find you!!
Thanks Christine for always reminding people!!
Take care!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | suez, hope you made it to the walk!!! Let me know if you did, would love to hear about it!!!
Take care!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Suez made it! Grandson too! Plenty of puddles for the boy to jump into! If he could outrun Grandma! Mike and I got to meet and chat a bit with her.
The young sisters that drove all the way from Toledo (in honor of their Mother) were there again this year. In the pouring rain. Heartwarming.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Hey Ginny!!! Yep we sure did meet, how you knew it was me when I first walked in you sure did surprise me with that! Pictures? Or cuz I was an old lady with a 2 yr old? lol
I sure wish I could have stayed and chatted all day long...but hell I was beat from that lil poo!! This is why us women go thru menapause! So we don't have kids at this age! lol
He never took a nap that day either! He was good though when I got home. My poor tennis shoes were soaked as were his and his pants but he told mommy he had fun when she got home! Hope to meeet up with you again!!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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