#13901 03-14-2003 03:28 PM | Joined: Mar 2003 Posts: 2 Member | OP  Member
Joined: Mar 2003 Posts: 2 | Hi Everyone -
First time here. Dad was just dx yesterday with oral cancer. Hasn't been given a stage yet. I'm not feeling hopeful. Complained of an earache since November. Swelling on the neck. Sore throat...two sores...back of tongue and tonsil.
Nasal scope today. PET scan and MRI next week. Two weeks of radiation at twice a day.
This seems surreal. I'm so sad. I love my Dad so much. I love his stories...his intelligence...he's my Dad. He can't be sick.
It's encouraging to read the entries. I'll definitely be back.
Thank you,
Laurie | | |
#13902 03-15-2003 06:55 AM | Joined: Mar 2003 Posts: 4 Member | | Member
Joined: Mar 2003 Posts: 4 | Hi Lol and Welcome! I guess we found the same site. I love him too.
xo
Lisa | | |
#13903 03-15-2003 08:27 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hang in there and think positive Laurie. The worst part is right now while they're gathering all of the diagnostic information and no treatment plan has been established yet. That is a pretty quick diagnosis you have and that puts things in a much more positive light. It will be helpful to find out the type and stage. My stage III tonsil cancer was growing for over a year before it was diagnosed. I have 3 more radiation treatments and the latest CT shows the tumor completely melted away. I am not sure that I understand the radiation treatment. Typically it would be 5 days a week for 6-7 weeks.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#13904 03-15-2003 09:14 AM | Joined: Mar 2003 Posts: 4 Member | | Member
Joined: Mar 2003 Posts: 4 | Gary,
I am Laurie's sister, Lisa, I am curious about your comment on the treatment. Lol was actually a bit off, the treatment for radiation was to be 2x day for 3 weeks followed by chemo? Does that sound closer?
Also, I thought I had read somewhere on the sight (but I cant find it now) about an alternative to radiation that is more accurate with less side effects. I haven't learned to manuver this sight enough to find it again.
Thanks for your comments. We are very grateful for any help...especially since we feel so very helpLESS.
Lisa | | |
#13905 03-15-2003 09:50 AM | | Anonymous Unregistered | | Anonymous Unregistered
| L & L,
I believe you are looking for information on the IMRT radiation treatments. There is a discussion on the boards right now concerning IMRT. Do a serach of the message boards and the site itself for more info.
Good luck and please keep us posted.
Take care,
Dinah | | |
#13906 03-15-2003 12:55 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Here is one link in the site for IMRT radiation http://www.oralcancerfoundation.org/facts/imrt_radiation.htm But you can always go to the word
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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