| | Joined: Mar 2011 Posts: 30 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Mar 2011 Posts: 30 |
Well, today was the first treatment...I got kind of hostile when I saw that they hadn't modified the mask to prevent my nose being smashed back into my brain (I had already asked them twice)...so I told them they could fix it or I could, and pulled out my nursing scissors (they easily cut a penny in half.) VICTORY TEAM KELLI!!!! They cut it back a little so it didn't hurt as much. I'll take the small victories.
The treatment lasted about 15 minutes (one down, 34 to go.) I didn't puke today, like I did last Wednesday for my PET scan, but I still cried....yeah, I'm a claustrophobic baby. They took my blood pressure after (why after?) and it was 128/78, which isn't really too bad until you realize that my baseline usually runs about 90/58. They gave me a script for an anti-anxiety med to try for tomorrows treatment. Hope it helps. Good news, my PET scan was clear...another small victory...I'll take it!
I will get my first chemo on Wednesday. Apparently it will be an all day extravaganza, from 9:30 am, until my radiation treatment at 3 pm. Yippee. Guess I'll pack a lunch and bring my pillow. Actually, I have an 11 am appointment with one of the hospital attorneys. I guess I was a participant on a surgery (a year ago) which is being litigated. I checked the computer...I actually only scrubbed in on the case to give a dinner break (30 minutes.) I'm sorry, but I can't remember what I did last week...much less a year ago, for 30 minutes!!! So I will be traveling to Risk Management Department, to talk with an attorney, with my chemo bag on an IV pole. Sheesh!
I'll let you all know Wednesday how it goes...the attorney, the chemo and the rads....and whether or not the Ativan helps with the phobia.
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | will be thinking about you kelli! and will be checking on you here in the forum. : )
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Good for Team Kelli! Hope everything goes well today! Let us know how it goes!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Can't see how you will make an 11 am appt with the atty with chemo at 9:30 unless the atty will be visiting you.
Good luck. All of us that had the concurrent chemo/rad know chemo days are long ones!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | As the late 2Pac would say if he were here (and not in New Zealand apparently...) Keep ya head up 
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Good luck and best wishes on your future battles in this war!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | hi kelli, just wanted to let you know i've been thinking of you today as i remembered it was your first day of chemo.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Mar 2011 Posts: 30 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2011 Posts: 30 | My third rad and my 1st chemo went better than anticipated. I have a fan that they blow on my face/mask during rads and it really seems to help with the claustrophobia....I'm sure the Ativan helps a little. No crying since Monday, and the hyperventilating doesn't seem as bad either. Can't believe how much the fan helps!
The chemo was totally uneventful. I got to the deposition (with my chemo running,) which lasted 2 full hours! Apparently, the attorney was far more impressed with my knowledge of surgical anatomy and surgical team work, than the assistant who did the lion's share of the case. He seems to think I will make a better impression, should the case go to trial. Yippee. I ran into a lot of my co-workers while I was at the hospital all day. It was nice to see them. They say they miss me and they're praying for me.
It looks like I am getting a faint redness on my neck. I have an aloe cream to apply (will do as soon as I'm done here.) I think the Dexamethasone from yesterday has made me shaky today. I have a script for Zofran, which I took last night, but probably didn't need, as I really didn't have any nausea.
Mom sees the RO tomorrow to get the results of her PET scan for her lung cancer. I'm not feeling very optimistic, simply because her symptoms have returned with a vengeance (wheezing, fatigue, shortness of breath.) I plan to take her so I can translate for her (Indian doctor to non-medically oriented patient.) If ya'll could spare some prayers for my mom....I'd be really grateful.
Kelli Jo | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | "He seems to think I will make a better impression, should the case go to trial." Well, duh, of course you'll make a fabulous impression. Breezing through a 2 hour deposition with the chemo running is .... pretty impressive.
My best wishes to your mom with her appointment. I know that she will be happy to have you at her side.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | hi kelli jo,
so very glad to see things went well. will absolutely say a pray for your mom. have plenty to spare, wink.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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