| | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Eric: You crack me up.... sometimes I have to read your posts twice because I can't believe what I read....
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | U crazy nut Eric!! I love you and your honestness and living life in the way do, in humor! Cuz if I didn't live it that way, I'd be insane from the way this world really is and what life has dealt me so I just laugh about it! And yes...I too have had a great sex life in my younger days, and I loved almost all of it! lol And Ron didn't have his swallow study, it was just a followup. His apt for that is the 23rd of this month, but, he is eating now himself, so far no pneumonia, he ate 3 yes 3 bowls of ice cream yesterday, Chocolate Peanut Butter Cup and Oreo cookie. I asked him how his belly was this morning and he said fine, I ate a little bit of the PB one with him and the chunks of cups and mine wasn't fine...Saturday morning he wanted scrambled eggs, so I made them in some bacon grease and he loved it, said it was great not to burp up formula taste.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Ingrid, I should probably read my posts 2x too, protein is a micronutrient and not a macronutrient...(smacks head) I'm an idiot. Hahaha!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Eric I told Ron about you, lol how you are so positive in your outlook on life as each day comes you grasp it and enjoy it to the fullest, your "beliefs" in herbal non legal meds(why do you think he ate 3 bowls of ice cream yesterday?)  i love messing with him when he's so "happy" he cracks me up!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Sue, I'm glad that Ron is eating and I really do appreciate you my dear. You rock. Personally I think messing with "happy" people should be a sport and judged. What I find funny is knocking on their door really loudly and yelling "Police!" it always gets a rise out of them and a good laugh for me I'm kidding that's cruel...funny but cruel especially if you ruin a dime bag of happiness  That's happiness abuse and should require counseling. Live life, be well Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | roflmao! omg, i laughed outloud when i read your response eric and i'm at work, oh well they are used to me talking to myself anyway so what's an outloud laugh coming from my office. i never thought about doing that one bout yelling out POLICE hahahaha my ex husband is on the SWAT team. i'm sure my kid would have pooped his pants if I done that when he was younger!
Yesterday I came home from work and Tuesday's are BW3's Wing night I go almost every week, and there was Ron all cleaned up, showered and shaved his "half a beard" that is left that grows and he went out with me! He looked very good, best he's looked since before his surgery actually. He came home afterwards and he was hungry after watching me eat and I made him some Barilla I think it is Mushroom Alfredo sauce from the jar with some fettucini. He told me this morning he feels really good, I told him cuz he's eating again getting food in his belly. Yay!!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Feb 2010 Posts: 79 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2010 Posts: 79 | Eric - Happy cows! I love it! I can't ever imagine giving up beef - even if it doesn't taste like I remember! I'm just going to keep trying and someday!!!!
Sue - you are bringing out the best in Ron!! Keep it up!!
You all just make me smile and are always there when it's needed! Thank you to you all!
Cathi
57 when diagnosed. Heavy smoker. Social drinker. Diagnosed 7/9/09 with tonsil, tongue & neck cancer. Chemo induction (Cisplatin, 5FU & Taxotere) & 35 radiation tx + 7 Carboplatin.
Head and neck CAT scan on 1/15/10 shows no cancer.
1/27/12 First PET/CAT scans in 2 years - All clear!!
recurrence mid-2015
OCF supporter and avid OCF CO and NJ walk attendee with worldwide friends
*** 1-7-16 passed away unexpectedly ***
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Eric... Best be careful one of those happy cows may just bite your tush!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | i blended ice cream, whole cream and ensure with tasteless whey powder for a minute so that there was no grit the first time i set this in front of my dad. i expected complaints but got a thumbs up.
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | ...and it's like 600 calories and 25g of protein
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
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