| Joined: Nov 2010 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Nov 2010 Posts: 38 | Good news is that Mom has been home 3 days now. Bad news is that with care not as good as the nursing staff in her rehab facility, her jejunal tube--where the food goes--is blocked. We have tried hot water, have tried Coke, nothing is working. Csn someone please advise? My sister is caring for her and she is feeding her tonight through the gastric tube, normally where medicine goes. Is this okay?
Thanks! Y'all are who I get my direction from!
Mom age 84 dx stage IV papillary cancer mandible 10/10; non-smoker, drinker, HPV-. Surgery 2/16/2011; mandibulectomy. 0 pos lymph nodes, has been in long-term hospital since March 2011. Returned home 8/11, permanent PEG tube.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Does your mother have a J/G tube? Does the top have 3 ports? One for the stomach, one teeny tiny one that would only fit a needle to go in and the 3rd one the biggest part going into her intestine? If this is what she has, I have the same kind. DO NOT PULL THIS OUT!!!!! There are stitches inside holding this in place. Another huge item is NEVER EVER pull back to get a residual on this kind of feeding tube. It could dislodge it. I did give you other into of your other post.
Keep working on it. Yes, its ok to use the skinny side for the feeding. I would suggest watering down the formula as this part is very small and would clog even easier. You can try to push just air thru too. If you cant get it call for help wither a visiting nurse or gastro doc. Someone should be on call. this would be considered an emergency so if you cant get help then go to the ER. This type of tube needs to be replaced every few months. I usually go about every 2-3 months. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | My mother had ovarian cancer and had a G/J tube with a weight on the jejunum end that just allowed it to natural gravitate by the digestive process into the jejunum. When she pulled her tube out in the middle of the night getting it caught as she was going to the bathroom they put one in that was much smaller in diameter and although they told us not to put crushed meds in, the nurse told us to go ahead and do it anyway. It got clogged the second night and the nurses actually called Senior Protective Services on me. That was a wild time. The key is to flush daily and we even got it to unclog with cranberry juice and saved the Coke as a last resort. The night before we were going to the Bahamas the water valve leaked and the tube came out and the doctor told me to put it back in but also told me it will get infected so enjoy the trip and deal with it when we got back home. If your mom has a G/J tube it needs to be switched out in a sterile environment like an OR. If it is just a Peg tube it can be done in an office.
To answer your specific question, you can feed through the gastric tub provided you are not using the formula intended to be feed directly to the jejunum as it is partially digested (to oversimplify the discussion) and not the same as Ensure. Likewise you could not put Ensure into the jejunal tube as it will cause a lot of digestive discomfort. Get her to the doctor to be safe.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Nov 2010 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Nov 2010 Posts: 38 | Here's an update on Mom--took her to the ER Monday after spending the morning being railroaded by ENT and Interventional Radiology. Wasted 5 hours in the ER as they were comfortable exchanging the J/G for a regular PEG, but that was all ER was willing to do. Thankfully, we have an appt this afternoon with IR to replace the J/G tube. AND thanks to y'alls expertise I will make an appt for a tube replace 3 months from today!
Mom age 84 dx stage IV papillary cancer mandible 10/10; non-smoker, drinker, HPV-. Surgery 2/16/2011; mandibulectomy. 0 pos lymph nodes, has been in long-term hospital since March 2011. Returned home 8/11, permanent PEG tube.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | For the J/G tube it isnt something you can plan on your calendar. Sometimes I need to have mine changed at 6 weeks and once I went almost to 4 months without a change. Its a simple procedure done as outpatient with just a shot of lidocaine in the stomach. The shots is the worst part of the whole thing. Pay careful attention to the tube and flush it several times per day. When you see the tube become kind of kinky and slightly curled it would be nearing the end of its lifespan. If the cap doesnt close tightly and it becomes leaky then it will need to be changed also. When you think its almost time for a new one, call her gastro doc's office and explain its a J/G tube which wears out and it needs to be replaced. My gastro doc usually gets me scheduled for a swap within a few days.
Glad you have gotten her tube changed to the PEG. I personally like the J/G much better even though having it changed is a bit of a pain. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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