| Joined: Jul 2011 Posts: 42 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2011 Posts: 42 | Thank goodness for second opinions. Johns Hopkins reclassified the pathology slides that they got from Prince William Hospital. PWH pathologists (2 of them...) said it was SCC. JH took a look and said it was intermediate grade mucoepidermoid carcinoma, though the final grading will be dependent on the full section. UGGG. I thought I was done with surprises until after the surgeries. http://oralcancerfoundation.org/facts/rare/mc/index.htmThe plan is still the same. TORS to resect right BOT on 8/17/11, and bilateral selective ND on 9/2/11 to check for metastasis. Overall, he is pleased with this change. He says the long term outlook is better as long as they can get clear margins. Apparently the BOT is a "good" place to have MEC since it is surrounded by soft tissue, and should result in less complications to remove.
Age 35 non-smoker, non-drinker 7/1/11 - Diagnosed with SCC @ BOT, stage 1, lingual tonsil & cyst removed 8/9/11 - Corrected diagnosis of MEC @ BOT 8/17/11 - TORS to remove lesion 9/2/11 - Bilateral neck dissection. All nodes clear! Done! 12/13/11 - PET/CT scan clear | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I commented on the other thread - but that's scary - the misdiagnosis. You'll pull through this well.  good luck with your upcoming surgeries - have they mentioned chemotherapy and rads yet?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2011 Posts: 42 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2011 Posts: 42 | He tells me that if they get clear margins and the ND comes back clear, he says I'll be done, though I suspect that could change if the pathology shows it as high grade MEC. Scary 
Age 35 non-smoker, non-drinker 7/1/11 - Diagnosed with SCC @ BOT, stage 1, lingual tonsil & cyst removed 8/9/11 - Corrected diagnosis of MEC @ BOT 8/17/11 - TORS to remove lesion 9/2/11 - Bilateral neck dissection. All nodes clear! Done! 12/13/11 - PET/CT scan clear | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | It is and it's not fun - but if it happens (saying a prayer for you that it doesn't!) theres plenty if support here - also if you didgeridoo the rads bullet - keep a close eye out especially he neck area!  take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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