| | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: Jan 2010 Posts: 142 | I have never had any problems with constipation until last year while on the pain meds. I just had my post 16 month follow up and I am still having a problem. Not near as bad but I can't seem to get back to normal. Any thoughts?
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer 1/18/10 Clr PET 1/27/10 Surgery found Perineural invasion 3/22/10 Began Rad 05/05/10 34 rads 8/19/10 Clr Pet Scan 12/13/10 Clr Ultra sound/biopsy 5/4/11 MRI Clear 8/2/11 All Clear 5/25/12 All Clear 6/3/2016 All Clear 5/25/2025 All Clear
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I have had the same question as it has been bad for me ever since treatment. All I can tell you is that I drink Mira lax about every other day, and sometimes twice a day per my gastroenterologist suggestion. He has also suggested Milk of Magnesia and Mineral Oil. I tend to stick with Mira-lax, because I can take is as long as I need to.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey there - well so long I have been blessed not to be too bad. I was a little off when. Was taking oxy but now that I'm off my meds I'm ok. I do have a dairy allergy that I've been ignoring and that I'm sure help even things out... I also toss flax oil into my morning smoothie. This I am sure helps immensely. Not sure If you still do the smoothie thing but it does help. Take care... Oh... Anne O was telling me that this problem could be related to thyroid... Have you had yours checked?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | | Senior Member (100+ posts) Joined: Jan 2010 Posts: 142 | Even with the Miralax I can't seem to get it right. If I use too much too often which means not even every day then I have the opposite problem. But if I don't take it then the contipation comes back. I did learn in the hospital that I am lactose intolerant and just watching that has almost eliminated diverticulitis attacks. I suppose that I will just have to figure out what will work for me. I just never realized it could be a permanent problem.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer 1/18/10 Clr PET 1/27/10 Surgery found Perineural invasion 3/22/10 Began Rad 05/05/10 34 rads 8/19/10 Clr Pet Scan 12/13/10 Clr Ultra sound/biopsy 5/4/11 MRI Clear 8/2/11 All Clear 5/25/12 All Clear 6/3/2016 All Clear 5/25/2025 All Clear
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Well, praise be! I thought I surely was the only person with this continuing plague. Never before in my life did I have problems with it, well maybe slightly for a couple of days after childbirth, but that's it.
The thing is I did not take pain meds to speak of. All I had that was constipating was Zofran which I got IV weekly with Cisplatin, and what I took orally following (which I stopped doing), thus spent some miserable days feeling sick and consipated. Oh, yes, and iron, always "the devil" to me. But I thought it would be over after treatment. Not so. There was a brief time when I thought I was getting back to normal, about a month after treatment, I'd have one bad day and the rest would be fairly normal, but that gradually got worse again. About that time I found that my thyroid was not working really well, which I do think it was not working really well before radiation. I had hopes this was the cause of my constipation, and it might well be, but am not sure.
I had a colonoscopy, yes I am always at least hovering at low normal for hemoglobin, so docs were really urging me to get it done. Everything checked out great, except for a "twisty bowel" which I am not sure I had at least to that extent before treatment. I am supposed to take Miralax every day, but have done like you have, cut back when I think it is too much, then been sorry . . . hate it. My gastroenterologist, who has experienced cancer, said, "you have to give it more time," so there you go.
I am going to believe that it will improve. You also can eat too much fiber and that will constipate you--never realized that before.
Thanks for bringing up this not very fun to talk about subject, at least for me. Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
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