#13734 01-01-2003 02:33 PM | Joined: Dec 2002 Posts: 235 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Dec 2002 Posts: 235 | Hi All,
First of all...Happy New Year to everyone! I was wondering, my husband (John)who has been off his radiation treatments for just a little over a month now, is still experiencing troublesome mouth sores. I know this is common and to be expected, but to him, he says they seem to be getting larger and more "raised". (He said they seemed flatter before). It's like they are "doubling up" in pairs. Does that make any sense? Has anyone heard of this happening before? If so, what can he apply or what kind of meds would be there for him to take to help ease them? He is concerned, because he was told that mouth sores would be one of the first things to go away after treatment! He does keep his mouth clean and rinses with a "BMX" mix and some other solutions that he got from the hospital - but these sores are really getting to him, and I know, also seem to prevent him from getting adequate nutrition in eating. Any advice would be greatly appreciated. Thanks. Forgive me if this has been answered previously before - but I could not locate any information. On average, how long do mouth sores last? Thanks again.
Donnajean
DonnaJean
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#13735 01-01-2003 02:52 PM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2002 Posts: 642 | The dentist at MD Anderson prescribed for me a rinse called Carrington Oral Wound Rinse and later a product called Gelclair. Both are supposed to heal mouth sores and neither is bad tasting. I cannot vouch for how much it really works as I have never had mouth sores. I was hoping to help heal my throat with it. I would ask your doctor about these two products and see if they can be of any help.
Danny G.
Stage IV Base of Tongue SCC Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#13736 01-02-2003 09:22 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | Hello, I am still suffering from mouth sore a year after completing the treatment but the severity of pain did reduce gradually. Now I can eat almost all kinds of food as ordinary people do except for spicy food and very hard ones like dry nuts.So be patient and be psychologically prepared that since side-effects are cumulative, the situation may worsen for a while and then it will be more stable later. Still a long battle to fight.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#13737 01-03-2003 06:22 PM | Joined: Dec 2002 Posts: 235 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Dec 2002 Posts: 235 | Wow! It took almost a whole year to get rid of those pesky things?! I don't know if I should tell my hubby that - he might get too discouraged, since he was told that would be one of the first things to "go away". I know his taste buds are still off. Just today I gave him a glass of diet cream soda (and he knows what it "should" taste like)...but he said that it tasted like a combination of cream soda and vinegar! (blaahh!) So I'm sure the mouth sores have something to do with that. He said he counted around 10 sores in his mouth although he said just a week ago it seemed less. But just the other day he was complaining that they felt more "raised" and "doubled up". I'm at a loss - but I suppose he'll just have to be patient and tolerant as possible. Geez, none of the doctors he has seen ever told us about the lasting side effects of the treatment. I just remember his surgeon telling him before his triple endoscopy that they were going to "beat him up" pretty good. I knew it wasn't going to be easy - but I wish they would have explained more to us about the side effects of the chemo and radiation. Thanks for your info - it does help!!
DonnaJean
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#13738 02-07-2003 06:33 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | My Oncologist recommended Colloidial Silver, Sovereign from the health food store. Swish 3 times a day and swallow.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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