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Just saw this Eileen. Hope everything is fine - please let us know. Prayers for healing heading to you from me.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Eileen Offline OP
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Hi Folks,

Just to let you know I'm home from the hospital last Tuesday. Doctor says everything went well. Not allowed to talk and wrist is sore and can't use much. I'm tired but to be expected. On nasal feeding tube which I had hoped to get rid of Monday but will have for at least another week as back up. Will see speech people Monday to see if I can swallow and talk.

Had minor setback last night as neck incision opened at drainage site. Back to HUP this am to have it fixed. He says cannot restitch and must heal from outside now. He packed it and says it will take longer to heal now that it is open.

Sister is staying with me this week and then will take me to her house for a week. Who knows after that. Right now can't walk very far and not driving. Very short of breath. Don't know why.

I thank you all for your well wishes. Can't type much so signing off.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Thanks for the update Eileen,
Glad to see that everything went well according to the doctors.
Sounds like you have a lot of recovering to do and I hope every passing day brings improvements. Like you I had my sister stay for around a week which was a great help and we realised that we enjoyed each other�s company throughout this time.
Love and best wishes for your healing process.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #136830 07-17-2011 06:55 AM
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Hang in there Eileen. I wish I could borrow some of your pain for a while to give you a break.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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"Above & Beyond" Member (500+ posts)
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Eileen,

I am so glad to hear from you and to know that your sister is helping you. I hope your recovery is swift and with no more snags. Sending you hugs and healing thoughts.

All my best-
Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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Eileen Offline OP
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Saw speech and doc on Monday. NG tube stays. Still no swallowing or talking. Drinking leaks through drain in neck. By the time they let me swallow again, I'm afraid I will have lost my ability to do it. Thinks don't go down now hopefully just due to swelling. Not in any pain. Taking Tylenol for wrist soreness. Heade to sisters and have to sign off.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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"OCF Canuck"
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Are you allowed to dry wswallow?


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Eileen, hope every day finds improvements in your progress - fast healing too!


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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Heal well, and hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Eileen,

Hope you are starting to feel better. Was thinking of you and wondering how you were. Wishing you lots of good health healing and happiness. KATE


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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